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Tessa Evans was born without nose, a very rare facial anomaly called 'arhinia'. The little girl, who is now 18-months-old, has helped in spreading awareness about her condition across the globe.
Tessa Evans has a very rare congenital facial anomaly called arhinia. Less than 50 cases have been detected in the globe in recent times. Since very little was known about this anomaly called arhinia, her family have been trying hard to spread awareness among people.
Tessa's parents, Grainne and Nathan Evans, from Maghera in Co Londonderry, were shell shocked when they found an article on the internet by a well known surgeon, who recommended that unborn babies with arhinia should not be brought into the world. "The main goal was always to raise awareness so that the next family with a baby like Tessa isn't left completely in the dark like we were. So we decided to go ahead and reach a wider audience," said Grainne.
Tessa Evans will soon undergo a surgery in Great Ormond Street Hospital in London, for a nose. Though the NHS will pay for the surgery and the treatment, the family is still in need for money. "We are constantly on the lookout for things that could improve her.
One thing, for example, that we are trying to provide for her are air filters for the house. She doesn't have any way of filtering air like a normal person. I would really like the air quality to be as good as it can," said Tessa's mother.
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