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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. (Photo by Daniel Ochoa de Olza/AP Photo)

A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. The festivity of the Maya comes from pagan rites and dates from the medieval age, appearing in ancient documents, it takes place every year in the beginning of May and celebrates the beginning off the spring. A girl between 7 and 11years is chosen as “Maya” and should sit still, serious, and quiet for a couple of hours in an altar on the street decorated with flowers and plants, afterwards they walk to the church with their family where they attend a ceremony. (Photo by Daniel Ochoa de Olza/AP Photo)
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13 May 2014 10:17:00
Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. Currently there is widespread fear that the Taliban who already control around half the country will reintroduce its notorious system barring girls and women from almost all work, and access to education. The Ministry of Education has announced the opening of schools, but there are  mixed reports in many areas where the Taliban have taken control or where fighting is ongoing. (Photo by Paula Bronstein/Getty Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)
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12 Aug 2021 08:41:00
A dog swims as a resident navigates his boat in a neighbourhood flooded by the Purus river, which continues to rise from days of heavy rainfall in the region, in Boca do Acre, Amazonas state March 14, 2015. According the state civil defense, more than 20,000 people have been left homeless along the Purus river, where incessant rains have flooded the area and caused the river to burst their banks. (Photo by Bruno Kelly/Reuters)

A dog swims as a resident navigates his boat in a neighbourhood flooded by the Purus river, which continues to rise from days of heavy rainfall in the region, in Boca do Acre, Amazonas state March 14, 2015. According the state civil defense, more than 20,000 people have been left homeless along the Purus river, where incessant rains have flooded the area and caused the river to burst their banks. (Photo by Bruno Kelly/Reuters)
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16 Mar 2015 10:33:00
In this November 17, 2014 photo, Pancho, a domesticated huitia, confronts a camera, in Bainoa, Cuba. With their rope-like, dark tails, long front teeth, and whiskers that appear to be vibrating, huitias look like giant rats. They measure nearly a foot long (about 30 centimeters), with the largest ones weighing in bigger than a small dog. (Photo by Ramon Espinosa/AP Photo)

In this November 17, 2014 photo, Pancho, a domesticated huitia, confronts a camera, in Bainoa, Cuba. With their rope-like, dark tails, long front teeth, and whiskers that appear to be vibrating, huitias look like giant rats. They measure nearly a foot long (about 30 centimeters), with the largest ones weighing in bigger than a small dog. (Photo by Ramon Espinosa/AP Photo)
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21 Nov 2014 12:58:00
Lindsay Knutson, left, plays in the heavy snow with her family dog, Aspen, and daughter Flora Bejblik, 4, cq, as her husband Bob Bejblik, rear left, shovels, Tuesday, March 5, 2013 in southwest Minneapolis. The National Weather Service predicted a two-day snow total of 8 to 12 inches for much of southeastern and east-central Minnesota, including the Twin Cities. (Photo by Elizabeth Flores/AP Photo/The Star Tribune)

Lindsay Knutson plays in the heavy snow with her family dog, Aspen, and daughter Flora Bejblik, 4, cq, as her husband Bob Bejblik, rear left, shovels, Tuesday, March 5, 2013 in southwest Minneapolis. The National Weather Service predicted a two-day snow total of 8 to 12 inches for much of southeastern and east-central Minnesota, including the Twin Cities. (Photo by Elizabeth Flores/AP Photo/The Star Tribune)
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07 Mar 2013 09:06:00
A Donald Trump impersonator with a bikini clad model stops at a hot dog vendor near Trump Tower on October 25, 2016 in New York, as part of a performance art piece by British artist Alison Jackson. The event is to promote Jackson's new show, “Private”, in New York, which features staged photographs portraying the private lives of public individuals. (Photo by Timothy A. Clary/AFP Photo)

A Donald Trump impersonator with a bikini clad model stops at a hot dog vendor near Trump Tower on October 25, 2016 in New York, as part of a performance art piece by British artist Alison Jackson. The event is to promote Jackson's new show, “Private”, in New York, which features staged photographs portraying the private lives of public individuals. (Photo by Timothy A. Clary/AFP Photo)
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26 Oct 2016 11:12:00
Mount Sinabung, a highly active volcano on Sumatra island, erupted several times this week. A volcanology agency has declared a danger zone of about four miles from the crater after seven farmers were killed and two others seriously injured. Here: A man carries his dog as a giant ash cloud rises from the Sinabung volcano in Karo, Indonesia on May 26, 2016. (Photo by Sutanta Aditya/Barcroft Images)

Mount Sinabung, a highly active volcano on Sumatra island, erupted several times this week. A volcanology agency has declared a danger zone of about four miles from the crater after seven farmers were killed and two others seriously injured. Here: A man carries his dog as a giant ash cloud rises from the Sinabung volcano in Karo, Indonesia on May 26, 2016. (Photo by Sutanta Aditya/Barcroft Images)
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28 May 2016 12:09:00