In northwest Russia, in a small village called Alekhovshchina, Nadia Sablin's aunts spend the warmer months together in the family home and live as the family has always lived, chopping wood to heat the house and making their own clothes. Sablin's book of photographs, “Aunties: The Seven Summers of Alevtina and Ludmila”, is published by Duke University Press. Here: “Two-Handed Saw, 2014”. (Photo by Nadia Sablin)

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)

Mohamed Badr al-Din (R) stands in front of his vintage cars along a street where he keeps them, in the al-Shaar neighborhood of Aleppo January 31, 2015. The 66-year-old collector nicknamed Abu Omar inherited the hobby from his father and has a large collection of vintage cars, some of which he says belonged to former Syrian officials and were used in several movies and shows. Before the unrest, Abu Omar planned to open a museum to display his cars, which are guarded from pedestrians by a turkey that he owns. He hopes that the turmoil in the country will end so that he can pursue his hobby and repair his cars, which are heavily damaged from shelling. (Photo by Abdalrhman Ismail/Reuters)

Ahead of May Day, AFP' s video and photo teams spoke to men and women around the globe whose jobs are becoming increasingly rare, particularly as technology transforms societies. Here: Mohammad Ashgar, 65, an Indian rickshaw puller, poses for a photograph next to his rickshaw in Kolkata on April 21, 2018. (Photo by Dibyangshu Sarkar/AFP Photo)

The car of Dan Wheldon of England driver of the #77 Bowers & Wilkins Sam Schmidt Motorsports Dallara Honda (left) flies in the air during the Las Vegas Indy 300 part of the IZOD IndyCar World Championships presented by Honda on October 16, 2011 at the Las Vegas Motor Speedway in Las Vegas, Nevada. (Photo by Robert Laberge/Getty Images)

An Indian Sikh Nihang, or warrior, performs Gatka martial arts skills during a procession at the Golden Temple in Amritsar on January 6, 2014, as part of birth anniversary celebrations of Guru Gobind Singh. The birth anniversary of Guru Gobind Singh, the tenth Sikh guru, is marked on January 6. (Photo by Narinder Nanu/AFP Photo)

Thor, Virginia Tech College of Engineering, Robotics and Mechanisms Laboratory, tries to connect the hose to a firehose connection during the hose task at the Homestead-Miami Speedway, Friday, December 20, 2013, in Homestead, Fla. (Photo by Alan Diaz/AP Photo)

Young dancers from the Style Dance Academy perform during a Mother's Day block party in Caracas, Venezuela, Sunday, May 19, 2019. Although Mother's Day was officially celebrated the previous weekend, people in the Petare area organized the neighborhood party to celebrate the mothers of their community. (Photo by Rodrigo Abd/AP Photo)