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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
Visitors watch as Grigory Broverman, a member of the Cryophile winter swimmers club, pours a bucket of cold water over his 6-year-old daughter Liza during a flash mob, part of a celebration of Polar Bear Day at the Royev Ruchey Zoo in a suburb of the Siberian city of Krasnoyarsk, Russia, November 29, 2015. The air temperature was around minus 5 degrees Celsius. (Photo by Ilya Naymushin/Reuters)

Visitors watch as Grigory Broverman, a member of the Cryophile winter swimmers club, pours a bucket of cold water over his 6-year-old daughter Liza during a flash mob, part of a celebration of Polar Bear Day at the Royev Ruchey Zoo in a suburb of the Siberian city of Krasnoyarsk, Russia, November 29, 2015. The air temperature was around minus 5 degrees Celsius. (Photo by Ilya Naymushin/Reuters)
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08 Jan 2016 08:06:00
An Iranian man sells colorful ropes at  the Tehrans old Bazaar, the place where the main economy trades take place, in Tehran, Iran, 25 January 2016. Reports state that Iranian officials expected the Iranian economy to grow on an average of eight percent over the coming five years following the lifting of sanctions against Iran. (Photo by Abedin Taherkenareh/EPA)

An Iranian man sells colorful ropes at the Tehrans old Bazaar, the place where the main economy trades take place, in Tehran, Iran, 25 January 2016. Reports state that Iranian officials expected the Iranian economy to grow on an average of eight percent over the coming five years following the lifting of sanctions against Iran. (Photo by Abedin Taherkenareh/EPA)
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02 Feb 2016 12:53:00
Pictures from Tasmania’s central plateau, shot by wilderness photographer Dan Broun, show the extraordinary damage wrought by more than a week of bushfires following lightning strikes in Australia’s southernmost state on January 13. 2016. The world heritage area was home to a range of unique alpine flora including pencil pines, king billy pines and cushion plants, some more than 1,000 years old. (Photo by Dan Broun)

Pictures from Tasmania’s central plateau, shot by wilderness photographer Dan Broun, show the extraordinary damage wrought by more than a week of bushfires following lightning strikes in Australia’s southernmost state on January 13. 2016. The world heritage area was home to a range of unique alpine flora including pencil pines, king billy pines and cushion plants, some more than 1,000 years old. Now more than 10,000ha of land has been incinerated, and ecologist say that, unlike eucalyptus trees, the ancient flora will not recover. (Photo by Dan Broun)
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02 Feb 2016 13:56:00
Tourists feed freshly picked grapes to 40-year-old elephant Boonruen, a long-term resident of the Hua Hin Hills vineyard, that used to be an elephant corral in Hua Hin, about 200km southwest of Bangkok, Thailand, 08 March 2016. The winery is among a handful of companies producing new latitude wines in non-traditional wine areas of the world near the equator. Harvest is only once a year in Thailand, this year in March. (Photo by Barbara Walton/EPA)

Tourists feed freshly picked grapes to 40-year-old elephant Boonruen, a long-term resident of the Hua Hin Hills vineyard, that used to be an elephant corral in Hua Hin, about 200km southwest of Bangkok, Thailand, 08 March 2016. The winery is among a handful of companies producing new latitude wines in non-traditional wine areas of the world near the equator. Harvest is only once a year in Thailand, this year in March. (Photo by Barbara Walton/EPA)
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20 Mar 2016 11:20:00
In this Monday, March 28, 2016 photo, trainer Catrina Bloomquist works with Nav, an 11-year-old rescued California sea lion, as part of a new exhibit opening at the Georgia Aquarium. The aquarium is in the midst of celebrating its tenth anniversary, and as part of the festivities, patrons will be introduced to the newest faces in Atlanta, a group of rescued California sea lions. (Photo by David Goldman/AP Photo)

In this Monday, March 28, 2016 photo, trainer Catrina Bloomquist works with Nav, an 11-year-old rescued California sea lion, as part of a new exhibit opening at the Georgia Aquarium. The aquarium is in the midst of celebrating its tenth anniversary, and as part of the festivities, patrons will be introduced to the newest faces in Atlanta, a group of rescued California sea lions. (Photo by David Goldman/AP Photo)
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01 Apr 2016 12:18:00
Palestinian woman Jihan Abu Muhsen prepares her donkey with her son Kareem before going work collecting bricks for sale from sites of demolished buildings, at her dwelling in Khan Younis in the southern Gaza Strip March 8, 2016. Abu Muhsen gathers bricks from the sites of demolished buildings and sells them to recycling factories. She earns around 20 shekels ($5) a day and her 10-year-old son Mohammad helps her when he is not at school. (Photo by Ibraheem Abu Mustafa/Reuters)

Palestinian woman Jihan Abu Muhsen prepares her donkey with her son Kareem before going work collecting bricks for sale from sites of demolished buildings, at her dwelling in Khan Younis in the southern Gaza Strip March 8, 2016. Abu Muhsen gathers bricks from the sites of demolished buildings and sells them to recycling factories. She earns around 20 shekels ($5) a day and her 10-year-old son Mohammad helps her when he is not at school. (Photo by Ibraheem Abu Mustafa/Reuters)
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19 Apr 2016 13:32:00
Orthodox Christian pilgrims from Abkhazia walk along the Via Dolorosa (Way of Suffering), during the Good Friday procession in Jerusalem's old city on April 29, 2016. Thousands of pilgrims took part in processions along the route where, according to tradition, Jesus carried the cross during his last days. (Photo by Gali Tibbon/AFP Photo)

Orthodox Christian pilgrims from Abkhazia walk along the Via Dolorosa (Way of Suffering), during the Good Friday procession in Jerusalem's old city on April 29, 2016. Thousands of pilgrims took part in processions along the route where, according to tradition, Jesus carried the cross during his last days. (Photo by Gali Tibbon/AFP Photo)
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30 Apr 2016 09:27:00