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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A Uyghur boy sits atop a horse as he has his picture taken outside the Id Kah Mosque before the Eid holiday  on July 28, 2014 in old Kashgar, Xinjiang Province, China. (Photo by Kevin Frayer/Getty Images)

A Uyghur boy sits atop a horse as he has his picture taken outside the Id Kah Mosque before the Eid holiday on July 28, 2014 in old Kashgar, Xinjiang Province, China. Nearly 100 people have been killed in unrest in the restive Xinjiang Province in the last week in what authorities say is terrorism but advocacy groups claim is a result of a government crackdown to silence opposition to its policies. China's Muslim Uyghur ethnic group faces cultural and religious restrictions by the Chinese government. Beijing says it is investing heavily in the Xinjiang region but Uyghurs are increasingly dissatisfied with the influx of Han Chinese and uneven economic development. (Photo by Kevin Frayer/Getty Images)
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10 Aug 2014 10:53:00
Csilla Orgel, a geologist of Crew 125 EuroMoonMars B mission, makes her way back to the Mars Desert Research Station (MDRS) in the Utah desert March 3, 2013. (Photo by Jim Urquhart/Reuters)

NASA says it could be another 20 years before humans touch down on Mars, but in a sense, the Mars Society has been exploring the red planet for more than a decade – in Utah. Photo: Csilla Orgel, a geologist of Crew 125 EuroMoonMars B mission, makes her way back to the Mars Desert Research Station (MDRS) in the Utah desert March 3, 2013. The MDRS aims to investigate the feasibility of a human exploration of Mars and uses the Utah desert's Mars-like terrain to simulate working conditions on the red planet. Scientists, students and enthusiasts work together developing field tactics and studying the terrain. All outdoor exploration is done wearing simulated spacesuits and carrying air supply packs and crews live together in a small communication base with limited amounts of electricity, food, oxygen and water. Everything needed to survive must be produced, fixed and replaced on site. (Photo by Jim Urquhart/Reuters)
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14 Mar 2013 12:11:00


“eLEGS is a wearable, artificially intelligent, bionic device that enables people with paralysis to stand up and walk again. The exoskeleton is battery-powered and rechargeable, fitting comfortably and securely over clothing. Initially, eLEGS will be used under medical supervision for rehabilitation and training”. – BerkeleyBionics.com

Photo: Paralysis victim Stephanie Sablan (L) is helped by physical therapist Shonna Moran as she walks using eLEGS robotic legs at Santa Clara Valley Medical Center on May 25, 2011 in San Jose, California. Sablan, 24, was paralyzed from the waist down earlier this year when she was in a car accident and has begun using the newly developed eLEGS made by Berkeley Bionics. The robot-like battery powered eLEGS fit over clothing and enables people with paralysis to stand up and walk again. (Photo by Justin Sullivan/Getty Images)
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26 May 2011 09:56:00
A Palestinian beekeeper uses smoke to calm bees in the process of collecting honey at a farm in Rafah, in the southern Gaza Strip April 11, 2016. (Photo by Suhaib Salem/Reuters)

A Palestinian beekeeper uses smoke to calm bees in the process of collecting honey at a farm in Rafah, in the southern Gaza Strip April 11, 2016. Rateb Samour sees 250 patients a day, whose complaints range from hair loss to cerebral palsy and cancer. He is not a doctor and has never worked in a hospital. Samour inherited the skill of bee-sting therapy from his father. From 2003 the agricultural engineer dedicated all his time to study and develop the alternative-medicine treatment of apitherapy, which uses bee-related products from honey, propolis – or bee glue used to build hives – to venom. (Photo by Suhaib Salem/Reuters)
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13 Apr 2016 09:14:00
A girl salutes to visitors before a show at the Mangyongdae Children's Palace in central Pyongyang, North Korea May 5, 2016. Foreign journalists invited to cover North Korea's first ruling party congress in 36 years were treated on Thursday to song and dance performances by schoolchildren professing their love for leader Kim Jong Un. Kim is expected to use the congress starting on Friday to declare North Korea a nuclear weapons state and formally adopt his “Byongjin” policy to pursue economic development and nuclear capability at the same time. (Photo by Damir Sagolj/Reuters)

A girl salutes to visitors before a show at the Mangyongdae Children's Palace in central Pyongyang, North Korea May 5, 2016. Pyongyang held a gala of song and dance performances by local school children on May 5 for visiting delegations of foreign journalists and tourists at the Mangyongdae Children's Palace. The event included orchestral, choir, and acrobatic performances, many of them with political undertones. The Seventh Worker's Party Congress commences on May 6, 2016. (Photo by Damir Sagolj/Reuters)
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06 May 2016 13:37:00
Lisandra Perez, 7, practices in his house before his flute lesson at the Integral System of Artistic Education for Social Inclusion (SIFAIS) center in the poor neighborhood of La Carpio, Costa Rica October 8, 2015. (Photo by Juan Carlos Ulate/Reuters)

Lisandra Perez, 7, practices in his house before his flute lesson at the Integral System of Artistic Education for Social Inclusion (SIFAIS) center in the poor neighborhood of La Carpio, Costa Rica October 8, 2015. SIFAIS center is developing a social program with the help of 156 volunteers who teach art, music, sports and education, for children and youth living in La Carpio, known for being the home to gangs, violence, drugs and social vulnerability, according to the centre. (Photo by Juan Carlos Ulate/Reuters)
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15 Oct 2015 08:02:00
French twins Thomas and Vincent (L) Seris take the tram in Bordeaux, November 12, 2014. Born with Xeroderma Pigmentosum (XP), the twins cannot be exposed to the sun and its ultraviolet (UV) light, which could provoke precocious cancers due to an autosomal recessive genetic disorder of DNA repair. (Photo by Regis Duvignau/Reuters)

French twins Thomas and Vincent (L) Seris take the tram in Bordeaux, November 12, 2014. Born with Xeroderma Pigmentosum (XP), the twins cannot be exposed to the sun and its ultraviolet (UV) light, which could provoke precocious cancers due to an autosomal recessive genetic disorder of DNA repair. Colloquially referred to as Children of the Night (Les Enfants de la Lune) the Seris twins are among 70 to 80 people in France who suffer from the genetic defect. The French association “Les Enfants de la Lune” reports that there are between five and ten thousand such cases in the world. Thomas and Vincent have been testing a new protective mask for the last year which is transparent and ventilated and developed by several hospitals in France. (Photo by Regis Duvignau/Reuters)
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01 Feb 2015 10:27:00