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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A devotee of the Chinese Jui Tui Shrine has his face pierced with metal rods during a street procession during the annual Vegetarian Festival in the southern Thai town of Phuket on October 19, 2015. During the festival, which begins on the first evening of the ninth lunar month and lasts nine days, religious devotees slash themselves with swords, pierce their cheeks with sharp objects and commit other painful acts to purify themselves, taking on the sins of the community. (Photo by Nicolas Asfouri/AFP Photo)

A devotee of the Chinese Jui Tui Shrine has his face pierced with metal rods during a street procession during the annual Vegetarian Festival in the southern Thai town of Phuket on October 19, 2015. During the festival, which begins on the first evening of the ninth lunar month and lasts nine days, religious devotees slash themselves with swords, pierce their cheeks with sharp objects and commit other painful acts to purify themselves, taking on the sins of the community. (Photo by Nicolas Asfouri/AFP Photo)
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21 Oct 2015 08:05:00
A visitor looks at a sculpture by a Chinese artist Chen Wenling at the "Sculpture by the Sea" exhibition which runs along the Bondi to Tamarama coastal walk in Sydney on October 22, 2015. The world's largest annual free-to-the-public outdoor sculpture exhibition runs from October 22 – November 8 this year and features over 107 sculptures by artists around the world. (Photo by Saeed Khan/AFP Photo)

A visitor looks at a sculpture by a Chinese artist Chen Wenling at the "Sculpture by the Sea" exhibition which runs along the Bondi to Tamarama coastal walk in Sydney on October 22, 2015. The world's largest annual free-to-the-public outdoor sculpture exhibition runs from October 22 – November 8 this year and features over 107 sculptures by artists around the world. (Photo by Saeed Khan/AFP Photo)
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24 Oct 2015 10:17:00
Models painted in camouflage colours to blend in with the background pose for Chinese artist Liu Bolin's artwork “Dongji”, or Winter Solstice, on the second day after China's capital Beijing issued its second ever “red alert” for air pollution, in Beijing, China, December 20, 2015. (Photo by Kim Kyung-Hoon/Reuters)

Models painted in camouflage colours to blend in with the background pose for Chinese artist Liu Bolin's artwork “Dongji”, or Winter Solstice, on the second day after China's capital Beijing issued its second ever “red alert” for air pollution, in Beijing, China, December 20, 2015. In this artwork, Liu wants to express his concerns about China and its people, including air pollution problem, Liu told Reuters. (Photo by Kim Kyung-Hoon/Reuters)
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22 Dec 2015 08:01:00
A painting of Chinese President Xi Jinping holding an umbrella is seen on the toilet wall in a guesthouse in Hong Kong December 30, 2014. Set up in a small apartment in the Causeway Bay shopping district, the guesthouse that gives what it calls “Umbrella Revolution Occupation Experience” charges guest HK$100 (US$13) a night to stay in a tent surrounded by pro-democracy banners. (Photo by Tyrone Siu/Reuters)

A painting of Chinese President Xi Jinping holding an umbrella is seen on the toilet wall in a guesthouse in Hong Kong December 30, 2014. Set up in a small apartment in the Causeway Bay shopping district, the guesthouse that gives what it calls “Umbrella Revolution Occupation Experience” charges guest HK$100 (US$13) a night to stay in a tent surrounded by pro-democracy banners, a cardboard cutout of President Xi Jinping holding a yellow umbrella, and serve toilet paper printed with the face of embattled leader of Hong Kong chief executive Leung Chun-ying. (Photo by Tyrone Siu/Reuters)
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31 Dec 2014 14:00:00
Chinese aids activists hand out condoms in a subway train in Wuhan, central China's Hubei province on December 1, 2014. The World Health Organization issued a call to action to China on December 1, 2014 over HIV/AIDS as government figures said nearly half a million people are living with the disease or its precursor, with hundreds of thousands more thought to be undiagnosed. (Photo by AFP Photo)

Chinese aids activists hand out condoms in a subway train in Wuhan, central China's Hubei province on December 1, 2014. The World Health Organization issued a call to action to China on December 1, 2014 over HIV/AIDS as government figures said nearly half a million people are living with the disease or its precursor, with hundreds of thousands more thought to be undiagnosed. (Photo by AFP Photo)
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06 Dec 2014 12:57:00
This picture taken on September 14, 2024 shows Filipina wrestler “Crystal” fighting her opponent Yuki Kamifuku of Japan (not pictured) during a Middle Kingdom Wrestling (MKW) championship event in Shanghai. Despite a promising potential domestic market, the Chinese pro wrestling community has been battling for recognition and financial stability for decades. (Photo by Wang Zhao/AFP Photo)

This picture taken on September 14, 2024 shows Filipina wrestler “Crystal” fighting her opponent Yuki Kamifuku of Japan (not pictured) during a Middle Kingdom Wrestling (MKW) championship event in Shanghai. Despite a promising potential domestic market, the Chinese pro wrestling community has been battling for recognition and financial stability for decades. (Photo by Wang Zhao/AFP Photo)
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25 Nov 2024 04:05:00
Residents gather to watch fireworks rehearsals ahead of the upcoming 100th anniversary of the founding of China's ruling Communist Party in Beijing on Tuesday, June 22, 2021. Chinese authorities have closed Beijing's central Tiananmen Square to the public, eight days ahead of a major celebration being planned to mark the 100th anniversary of the founding of the ruling Communist Party. (Photo by Ng Han Guan/AP Photo)

Residents gather to watch fireworks rehearsals ahead of the upcoming 100th anniversary of the founding of China's ruling Communist Party in Beijing on Tuesday, June 22, 2021. Chinese authorities have closed Beijing's central Tiananmen Square to the public, eight days ahead of a major celebration being planned to mark the 100th anniversary of the founding of the ruling Communist Party. (Photo by Ng Han Guan/AP Photo)
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29 Jun 2021 09:39:00