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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A man distributes bread to Burka-wearing Afghan women outside a bakery in Kabul, Afghanistan, Thursday, December 2, 2021. According to U.N. figures from early November, almost 24 million people in Afghanistan, around 60% percent of the population, suffer from acute hunger, including 8.7 million living in near famine. Increasing numbers of malnourished children have filled hospital wards. (Photo by Petros Giannakouris/AP Photo)

A man distributes bread to Burka-wearing Afghan women outside a bakery in Kabul, Afghanistan, Thursday, December 2, 2021. According to U.N. figures from early November, almost 24 million people in Afghanistan, around 60% percent of the population, suffer from acute hunger, including 8.7 million living in near famine. Increasing numbers of malnourished children have filled hospital wards. (Photo by Petros Giannakouris/AP Photo)
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17 Dec 2021 10:10:00
Indigenous Q'eqchi girls practice taekwondo with their teacher, Danny Coy, on a dirt court in the middle of the village in Tipulcan village, San Pedro Carcha, Guatemala, on 25 November 2019 (issued 27 November 2019). Tipulcan village girls learn taekwondo to combat sexist violence and harassment they have suffered in their community in northern Guatemala. (Photo by Esteban Biba/EPA/EFE)

Indigenous Q'eqchi girls practice taekwondo with their teacher, Danny Coy, on a dirt court in the middle of the village in Tipulcan village, San Pedro Carcha, Guatemala, on 25 November 2019 (issued 27 November 2019). Tipulcan village girls learn taekwondo to combat sexist violence and harassment they have suffered in their community in northern Guatemala. (Photo by Esteban Biba/EPA/EFE)
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01 Dec 2019 00:07:00
In this September 9, 2018 photo, a diver holds onto his catch of lobsters during a fishing journey in the Miskito coast near Cay Savannah, Honduras. A diver makes 75 lempiras ($3) per pound of lobster. An average 10-pound daily haul of lobster is a windfall for people in one of the most impoverished regions of the Americas, so many take the risk, and many suffer for it. (Photo by Rodrigo Abd/AP Photo)

In this September 9, 2018 photo, a diver holds onto his catch of lobsters during a fishing journey in the Miskito coast near Cay Savannah, Honduras. A diver makes 75 lempiras ($3) per pound of lobster. An average 10-pound daily haul of lobster is a windfall for people in one of the most impoverished regions of the Americas, so many take the risk, and many suffer for it. (Photo by Rodrigo Abd/AP Photo)
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23 Jan 2019 00:01:00
Members of the Turkana community work unblocking an irrigation canal to provide water to their sorghum crops in an arid dry area in Nanyee, near Lodwar, Turkana County, Kenya, on October 1, 2019. Turkana is a vast, dry area in the north-west of Kenya that is on the frontline of climate change. With regular searing temperatures the Turkana people are suffering from recurring and prolonged droughts. (Photo by Luis Tato/AFP Photo)

Members of the Turkana community work unblocking an irrigation canal to provide water to their sorghum crops in an arid dry area in Nanyee, near Lodwar, Turkana County, Kenya, on October 1, 2019. Turkana is a vast, dry area in the north-west of Kenya that is on the frontline of climate change. With regular searing temperatures the Turkana people are suffering from recurring and prolonged droughts. (Photo by Luis Tato/AFP Photo)
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28 Oct 2019 00:05:00
A woman spits red paint as if it is blood protesting against bullfights in Madrid, Spain on March 27, 2016. Anti-bullfighting protesters have turn the iconic square of “Puerta del Sol” into a bullring. Protesters, almost naked covered with red paint as if it was blood, have demanded the abolition of bullfights under the slogan “The bull suffers!”. (Photo by Marcos del Mazo/Pacific Press)

A woman spits red paint as if it is blood protesting against bullfights in Madrid, Spain on March 27, 2016. Anti-bullfighting protesters have turn the iconic square of “Puerta del Sol” into a bullring. Protesters, almost naked covered with red paint as if it was blood, have demanded the abolition of bullfights under the slogan “The bull suffers!”. (Photo by Marcos del Mazo/Pacific Press)
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29 Mar 2016 12:15:00
Indonesian mahouts (elephant masters) bathe elephants prior to a daily patrol at a Conservation Respons Unite (CRU) to control elephant-human conflicts in Serbajadi, East Aceh on April 7, 2016. Elephants have joined the front line in the fight against poaching and illegal logging in the dense jungles of Sumatra. Guided by their Indonesian mahouts, they trek alongside rivers, over rough terrain and deep into the rainforest in an area that is home to numerous endangered species, from orangutans to tigers, but which has suffered devastating deforestation in recent years. (Photo by AFP Photo/Januar)

Indonesian mahouts (elephant masters) bathe elephants prior to a daily patrol at a Conservation Respons Unite (CRU) to control elephant-human conflicts in Serbajadi, East Aceh on April 7, 2016. Elephants have joined the front line in the fight against poaching and illegal logging in the dense jungles of Sumatra. Guided by their Indonesian mahouts, they trek alongside rivers, over rough terrain and deep into the rainforest in an area that is home to numerous endangered species, from orangutans to tigers, but which has suffered devastating deforestation in recent years. (Photo by AFP Photo/Januar)
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11 Apr 2016 10:24:00
The feet of a Filipino penitent is nailed to a wooden cross during Good Friday rituals on April 3, 2015 at Cutud, Pampanga province, northern Philippines. Several Filipino devotees had themselves nailed to crosses Friday to remember Jesus Christ's suffering and death, an annual rite frowned upon by church leaders in this predominantly Roman Catholic country. (Photo by Aaron Favila/AP Photo)

The feet of a Filipino penitent is nailed to a wooden cross during Good Friday rituals on April 3, 2015 at Cutud, Pampanga province, northern Philippines. Several Filipino devotees had themselves nailed to crosses Friday to remember Jesus Christ's suffering and death, an annual rite frowned upon by church leaders in this predominantly Roman Catholic country. (Photo by Aaron Favila/AP Photo)
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05 Apr 2015 11:14:00