Bride Yulia Tagil sits on the backseat of a bike as she arrives for her alternative wedding ceremony on a square in Tel Aviv July 25, 2010. The alternative wedding ceremony was intended to demonstrate against the current situation in Israel, where the only way for Jews to get married by law is through the Chief Rabbinate. (Photo by Nir Elias/Reuters)

A view of one of the stands during the inauguration of the Integrated Systems Europe (ISE) fair, the largest audiovisual show in the world, in Barcelona city, Catalonia, north-eastern Spain, 31 January 2023. The event runs until 03 February, gathers 68,000 registered attendees and 1,055 exhibiting companies. (Photo by Quique Garcia/EPA)

A runner dressed as Spiderman poses before the annual “Sao Silvestre Run”, an international race through the streets of Sao Paulo, Brazil on December 31, 2021. (Photo by Carla Carniel/Reuters)

An Afghan man works at a traditional yarn factory in Heart province, Afghanistan July 28, 2015. (Photo by Mohammad Shoib/Reuters)

People kiss before the start of the Carmelitas street party on the first day of Carnival in Rio de Janeiro, Brazil, Friday, February 9, 2024. (Photo by Bruna Prado/AP Photo)

Border Security Force (BSF) personnel perform bike stunt during the 58th BSF Raising Day at Guru Nanak Dev University in Amritsar on December 4, 2022. (Photo by Narinder Nanu/AFP Photo)

A girl watches as a man jumps to cool off at a swimming pool in the village of Zllakuqan near the town of Klina on July 9, 2024. (Photo by Armend Nimani/AFP Photo)

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)