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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
13-year-old Emmanuel Festo from Tanzania poses for a portrait with a plush toy that he says makes him feel safe at night and that he sleeps with, in New York's Staten Island, September 21, 2015. Albino body parts are highly valued in witchcraft and can fetch a high price. Superstition leads many to believe albino children are ghosts who bring bad luck. (Photo by Carlo Allegri/Reuters)

13-year-old Emmanuel Festo from Tanzania poses for a portrait with a plush toy that he says makes him feel safe at night and that he sleeps with, in New York's Staten Island, September 21, 2015. Albino body parts are highly valued in witchcraft and can fetch a high price. Superstition leads many to believe albino children are ghosts who bring bad luck. Some believe the limbs are more potent if the victims scream during amputation, according to a 2013 United Nations report. (Photo by Carlo Allegri/Reuters)
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03 Oct 2015 08:04:00
In this November 19, 2015 photo, Ester Melendez feeds banana porridge to her nine-month-old daughter Dina, in Pichiquia, an Ashaninka indigenous community in Peru's Junin region. Incursions and assaults by loggers, miners, colonists and leftist guerrillas have reduced the lands of the Ashaninka people in the Peruvian Amazon, leaving many of the 97,000 members of the group malnourished, despite efforts by the government and independent organizations to help. (Photo by Rodrigo Abd/AP Photo)

In this November 19, 2015 photo, Ester Melendez feeds banana porridge to her nine-month-old daughter Dina, in Pichiquia, an Ashaninka indigenous community in Peru's Junin region. Incursions and assaults by loggers, miners, colonists and leftist guerrillas have reduced the lands of the Ashaninka people in the Peruvian Amazon, leaving many of the 97,000 members of the group malnourished, despite efforts by the government and independent organizations to help. (Photo by Rodrigo Abd/AP Photo)
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10 Dec 2015 08:00:00
Ultra Orthodox Jews look at the body of an alleged Palestinian assailant in Jerusalem Saturday, December 26, 2015. According to a police spokeswoman, policemen approached a man who drew their suspicions just outside the Old City for following a pair of Jewish worshippers. Then he pulled out a knife and tried to stab one of them, officers opened fire and killed the assailant. (Photo by Mahmoud Illean/AP Photo)

Ultra Orthodox Jews look at the body of an alleged Palestinian assailant in Jerusalem Saturday, December 26, 2015. According to a police spokeswoman, policemen approached a man who drew their suspicions just outside the Old City for following a pair of Jewish worshippers. Then he pulled out a knife and tried to stab one of them, officers opened fire and killed the assailant. (Photo by Mahmoud Illean/AP Photo)
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28 Dec 2015 08:03:00
Saguy says that while portraits of Fidel Castro are still found everywhere, they coexist with plenty of foreign brands on subtle display: from Apple logo decals affixed to 1950s Chevys to young people wearing Adidas T-shirts and Converse shoes. Here: Several groups of locals relax on the Malecon in Old Havana, Cuba May 1, 2016. Some chat and drink rum while others dive into the warm Caribbean Sea. (Photo by Dotan Saguy)

Photographer Dotan Saguy visited Cuba expecting to find resentment toward Americans, but he says that, instead, “Every Cuban I met was warm and welcoming despite me being an American”. Here: Several groups of locals relax on the Malecon in Old Havana, Cuba May 1, 2016. Some chat and drink rum while others dive into the warm Caribbean Sea. (Photo by Dotan Saguy)
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27 May 2016 12:50:00
A woman with a sign that reads in Portuguese “Being woman without Temer”, stands next to a police barricade during a protest against the gang rape of a 16-year-old girl in Sao Paulo, Brazil, Wednesday, June 1, 2016. In response to the assault, Brazil's interim President Michel Temer said that the country will set up a specialized group to fight violence against women. (Photo by Andre Penner/AP Photo)

A woman with a sign that reads in Portuguese “Being woman without Temer”, stands next to a police barricade during a protest against the gang rape of a 16-year-old girl in Sao Paulo, Brazil, Wednesday, June 1, 2016. In response to the assault, Brazil's interim President Michel Temer said that the country will set up a specialized group to fight violence against women. (Photo by Andre Penner/AP Photo)
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03 Jun 2016 13:05:00
A Bengal tiger licks a glass enclosure during a presentation of Bengial tiger cubs at the Malabon Zoo in Malabon City, north of Manila, Philippines, 14 July 2016. The Bengal tiger cubs, which were born at the zoo, are two months old and named “Tiger Duterte” and “Tiger Leni”. The Malabon Zoo has one of the largest private collections of exotic and endemic animals in the Philippines. (Photo by Mark R. Cristino/EPA)

A Bengal tiger licks a glass enclosure during a presentation of Bengial tiger cubs at the Malabon Zoo in Malabon City, north of Manila, Philippines, 14 July 2016. The Bengal tiger cubs, which were born at the zoo, are two months old and named “Tiger Duterte” and “Tiger Leni”. The Malabon Zoo has one of the largest private collections of exotic and endemic animals in the Philippines. (Photo by Mark R. Cristino/EPA)
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17 Jul 2016 11:06:00
An Iranian man sells colorful ropes at  the Tehrans old Bazaar, the place where the main economy trades take place, in Tehran, Iran, 25 January 2016. Reports state that Iranian officials expected the Iranian economy to grow on an average of eight percent over the coming five years following the lifting of sanctions against Iran. (Photo by Abedin Taherkenareh/EPA)

An Iranian man sells colorful ropes at the Tehrans old Bazaar, the place where the main economy trades take place, in Tehran, Iran, 25 January 2016. Reports state that Iranian officials expected the Iranian economy to grow on an average of eight percent over the coming five years following the lifting of sanctions against Iran. (Photo by Abedin Taherkenareh/EPA)
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02 Feb 2016 12:53:00