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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
The opening of sculptor Carole Feuerman solo outdoor public art show, Sea Idylls, on Park Avenue in NYC on April 27, 2023. The hyperrealistic sculptures in conjunction with Les Galeries Bartoux and Patrons of Park Avenue line the median. (Photo by Milo Hess/ZUMA Press Wire/Rex Features/Shutterstock)

The opening of sculptor Carole Feuerman solo outdoor public art show, Sea Idylls, on Park Avenue in NYC on April 27, 2023. The hyperrealistic sculptures in conjunction with Les Galeries Bartoux and Patrons of Park Avenue line the median. (Photo by Milo Hess/ZUMA Press Wire/Rex Features/Shutterstock)
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An artist performs in water during a dress rehearsal for 'Amaluna', a show by Cirque du Soleil, at the Royal Albert Hall in London, Britain January 15, 2016. (Photo by Dylan Martinez/Reuters)

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18 Jan 2016 08:01:00
Shaolin martial arts students perform Kung Fu suspended on wires in a rehearsal for a live-action night show in Zhengzhou, Henan province, China on April 28, 2018. (Photo by Reuters/China Stringer Network)

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01 May 2018 08:42:00
This photo provided by the Alameda County Sheriff's Office shows a man who was possibly trying to burglarize an abandoned Chinese restaurant in San Lorenzo, Calif., trapped in a grease vent before he was rescued Wednesday, December 12, 2018. Officials say he had been trapped for two days. Deputies and firefighters were called to the vacant building on Wednesday after someone heard cries for help. The sheriff tweeted that the man was trespassing and possibly trying to burglarize the empty restaurant. (Photo by Alameda County Sheriff's Office via AP Photo)

This photo provided by the Alameda County Sheriff's Office shows a man who was possibly trying to burglarize an abandoned Chinese restaurant in San Lorenzo, Calif., trapped in a grease vent before he was rescued Wednesday, December 12, 2018. Officials say he had been trapped for two days. Deputies and firefighters were called to the vacant building on Wednesday after someone heard cries for help. The sheriff tweeted that the man was trespassing and possibly trying to burglarize the empty restaurant. (Photo by Alameda County Sheriff's Office via AP Photo)
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14 Dec 2018 00:15:00
A young evacuee of Japanese ancestry waits with the family baggage before leaving by bus for an assembly center in California, in this April 1942 handout photo. (Photo by Courtesy Clem Albers/Department of the Interior/War Relocation Authority/National Archives/Reuters)

A young evacuee of Japanese ancestry waits with the family baggage before leaving by bus for an assembly center in California, in this April 1942 handout photo. February 19, 2017 marks the 75th anniversary of FDR signing executive order 9066, authorizing the internment of Japanese Americans during World War Two. (Photo by Courtesy Clem Albers/Department of the Interior/War Relocation Authority/National Archives/Reuters)
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19 Feb 2017 00:02:00
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Cosplayer Dom Charland, dressed as Batman, poses for his photographer on the Edge, the highest outdoor sky deck in the Western Hemisphere located Hudson Yards in New York on March 10, 2022. (Photo by Timothy A. Clary/AFP Photo)

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15 Mar 2022 05:54:00