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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
This picture taken on March 16, 2017 shows a crew member introducing the dining car of the Train Suite Shiki- Shima, operated by East Japan Railway, in Tokyo during a press preview. (Photo by AFP Photo/JIJI Press)

This picture taken on March 16, 2017 shows a crew member introducing the dining car of the Train Suite Shiki- Shima, operated by East Japan Railway, in Tokyo during a press preview. The luxury sleeper Shiki- Shima, which can accommodate up to 34 passengers, has 10 cars, including a lounge car, a dining car and two observatory cars. The train has only 17 cabins, all suites, and the most expensive room, known as Shiki- Shima Suite, is priced at 950,000 yen (8480 USD) per person when shared by two people. (Photo by AFP Photo/JIJI Press)
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04 May 2017 09:35:00
Frander Arroyo, select wings of butterflies at Blue Morpho Butterfly House in Alajuela, Costa Rica, March 10, 2016. According to Arroyo, owner of Blue Morpho Butterfly House, he collects dead butterflies from his garden to mount as handicraft like earrings, necklaces, paintings and rings for export with prices ranging from $12 to $16 a piece. (Photo by Juan Carlos Ulate/Reuters)

Frander Arroyo, select wings of butterflies at Blue Morpho Butterfly House in Alajuela, Costa Rica, March 10, 2016. According to Arroyo, owner of Blue Morpho Butterfly House, he collects dead butterflies from his garden to mount as handicraft like earrings, necklaces, paintings and rings for export with prices ranging from $12 to $16 a piece. (Photo by Juan Carlos Ulate/Reuters)
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12 Mar 2016 14:29:00
In this Tuesday, March 12, 2019 photo, a visitor takes part in an immersive experience showing visitors how dogs see from inside the head of a dog at the California Science Center in Los Angeles. A new exhibit at a Los Angeles museum examines the relationship between dogs and humans and explores why the two species seem to think so much alike and get along so well. “Dogs! A Science Tail” opens Saturday, March 16, 2019, at the California Science Center. (Photo by Richard Vogel/AP Photo)

In this Tuesday, March 12, 2019 photo, a visitor takes part in an immersive experience showing visitors how dogs see from inside the head of a dog at the California Science Center in Los Angeles. A new exhibit at a Los Angeles museum examines the relationship between dogs and humans and explores why the two species seem to think so much alike and get along so well. “Dogs! A Science Tail” opens Saturday, March 16, 2019, at the California Science Center. (Photo by Richard Vogel/AP Photo)
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15 Mar 2019 08:49:00
Festival-goers enjoy on Shipyard Island, the venue of the 24th Sziget (Island) Festival in Northern Budapest, Hungary, 12 August 2016. The festival is one of the biggest cultural events of Europe presenting art exhibitions, theatrical and circus performances and music concerts. (Photo by Polyák Attila/Origo.hu)

Festival-goers enjoy on Shipyard Island, the venue of the 24th Sziget (Island) Festival in Northern Budapest, Hungary, 12 August 2016. The festival is one of the biggest cultural events of Europe presenting art exhibitions, theatrical and circus performances and music concerts. (Photo by Polyák Attila/Origo.hu)
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14 Aug 2016 10:43:00
Mave Grace, 11, who had part of her arm chopped off by militiamen when they attacked the village of Tchee, stands with her sister Racahele-Ngabausi, aged two, in an Internally Displaced Camp in Bunia, Ituri province, eastern Democratic Republic of Congo, April 12, 2018. (Photo by Goran Tomasevic/Reuters)

Mave Grace, 11, who had part of her arm chopped off by militiamen when they attacked the village of Tchee, stands with her sister Racahele-Ngabausi, aged two, in an Internally Displaced Camp in Bunia, Ituri province, eastern Democratic Republic of Congo, April 12, 2018. (Photo by Goran Tomasevic/Reuters)
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28 Dec 2018 06:55:00
Spain's rider Fermin Aldeguer, foreground, leads as Spains rider Manuel Gonzalez Simon falls during Moto2 class race of the MotoGP Malaysian Grand Prix at the Sepang International Circuit in Sepang, Malaysia Sunday, November 12, 2023. (Photo by Vincent Thian/AP Photo)

Spain's rider Fermin Aldeguer, foreground, leads as Spains rider Manuel Gonzalez Simon falls during Moto2 class race of the MotoGP Malaysian Grand Prix at the Sepang International Circuit in Sepang, Malaysia Sunday, November 12, 2023. (Photo by Vincent Thian/AP Photo)
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22 Nov 2023 04:48:00
Ali al-Naami, convicted of murdering his three daughters, is placed on a carpet to be executed at a public square in Sana'a, Yemen, 16 June 2021. Defendant Ali al-Naami, 40, convicted of killing his daughters Rahaf, 7, Raghad, 12, and Malak, 14, in June 2019, was executed by an executioner in front of hundreds of spectators in a public square in Sana'a. He had admitted to strangling them and drowning them in a water tank after the mother left the house due to domestic disputes with him. (Photo by Yahya Arhab/EPA/EFE)

Ali al-Naami, convicted of murdering his three daughters, is placed on a carpet to be executed at a public square in Sana'a, Yemen, 16 June 2021. Defendant Ali al-Naami, 40, convicted of killing his daughters Rahaf, 7, Raghad, 12, and Malak, 14, in June 2019, was executed by an executioner in front of hundreds of spectators in a public square in Sana'a. He had admitted to strangling them and drowning them in a water tank after the mother left the house due to domestic disputes with him. (Photo by Yahya Arhab/EPA/EFE)
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20 Jun 2021 08:10:00