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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
Japanese Ground Self-Defense Force's 1st Airborne Brigade soldiers board a CH-47 helicopter for parachute drop training during their military drill at Higashifuji training field in Susono, west of Tokyo, July 8, 2013. Japan faces increasingly serious threats to its security from an assertive China and an unpredictable North Korea, a defence ministry report said on Tuesday, as ruling politicians call for the military to beef up its ability to respond to such threats. (Photo by Issei Kato/Reuters)

Japanese Ground Self-Defense Force's 1st Airborne Brigade soldiers board a CH-47 helicopter for parachute drop training during their military drill at Higashifuji training field in Susono, west of Tokyo, July 8, 2013. Japan faces increasingly serious threats to its security from an assertive China and an unpredictable North Korea, a defence ministry report said on Tuesday, as ruling politicians call for the military to beef up its ability to respond to such threats. (Photo by Issei Kato/Reuters)
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11 Jul 2013 09:21:00
A combination photo shows some of the colourful doors seen in Rabat's Medina and Kasbah of the Udayas, September 2014. UNESCO made Rabat a World Heritage Site two years ago and media and tour operators call it a “must-see destination”. (Photo by Damir Sagolj/Reuters)

A combination photo shows some of the colourful doors seen in Rabat's Medina and Kasbah of the Udayas, September 2014. UNESCO made Rabat a World Heritage Site two years ago and media and tour operators call it a “must-see destination”. But it seems the tourist hordes have yet to find out. While visitors are getting squeezed through the better-known sites of Marrakesh and Fez, the old part of Rabat - with its beautiful Medina and Kasbah of the Udayas - remains an almost unspoiled oasis of calm. Smaller and more compact, its labyrinths of streets, passages and dead ends are a treasure trove of shapes and colours, of moments begging to be caught by the photographer's lens. (Photo by Damir Sagolj/Reuters)
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08 Oct 2014 12:08:00
A person dressed as an astronaut walks past a man stopping traffic on a pedestrian crossing outside the Sydney Exhibition Centre September 13, 2014 where the science-fiction convention called “Oz Comic-Con” is currently being held. The two-day convention showcases “pop culture”, and includes appearances by actors from science-fiction movies and television shows. (Photo by David Gray/Reuters)

A person dressed as an astronaut walks past a man stopping traffic on a pedestrian crossing outside the Sydney Exhibition Centre September 13, 2014 where the science-fiction convention called “Oz Comic-Con” is currently being held. The two-day convention showcases “pop culture”, and includes appearances by actors from science-fiction movies and television shows. (Photo by David Gray/Reuters)
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13 Sep 2014 11:54:00
View of the “Sunset Lake” hot spring with it's unique colors caused by brown, orange and yellow algae-like bacteria called Thermophiles, that thrive in the cooling water turning the vivid aqua-blues to a murkier greenish brown, in the Yellowstone National Park, Wyoming on June 1, 2011. (Photo by Mark Ralston/AFP Photo)

View of the “Sunset Lake” hot spring with it's unique colors caused by brown, orange and yellow algae-like bacteria called Thermophiles, that thrive in the cooling water turning the vivid aqua-blues to a murkier greenish brown, in the Yellowstone National Park, Wyoming on June 1, 2011. Yellowstone National Park, was established by the U.S. Congress and signed into law by President Grant on March 1, 1872. The park is located primarily in the U.S. state of Wyoming, though it also extends into Montana and Idaho and was the first national park in the world. It is known for its wildlife and its many geothermal features, especially the Old Faithful Geyser. (Photo by Mark Ralston/AFP Photo)
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06 Apr 2014 08:02:00
A painting of Chinese President Xi Jinping holding an umbrella is seen on the toilet wall in a guesthouse in Hong Kong December 30, 2014. Set up in a small apartment in the Causeway Bay shopping district, the guesthouse that gives what it calls “Umbrella Revolution Occupation Experience” charges guest HK$100 (US$13) a night to stay in a tent surrounded by pro-democracy banners. (Photo by Tyrone Siu/Reuters)

A painting of Chinese President Xi Jinping holding an umbrella is seen on the toilet wall in a guesthouse in Hong Kong December 30, 2014. Set up in a small apartment in the Causeway Bay shopping district, the guesthouse that gives what it calls “Umbrella Revolution Occupation Experience” charges guest HK$100 (US$13) a night to stay in a tent surrounded by pro-democracy banners, a cardboard cutout of President Xi Jinping holding a yellow umbrella, and serve toilet paper printed with the face of embattled leader of Hong Kong chief executive Leung Chun-ying. (Photo by Tyrone Siu/Reuters)
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31 Dec 2014 14:00:00
A Flemish demonstrator, one of thousands who gathered for a march through Brussels to protest against what the Flemings call their subjucation by the French-speaking Walloons, draws back as he is jeered by a crowd of Walloons on the pavement in a Brussels Street, on October 14, 1962. The Flemish demonstrators clashed with Walloon counter demonstrators as riot police sought to maintain order. (Photo by AP Photo)

A Flemish demonstrator, one of thousands who gathered for a march through Brussels to protest against what the Flemings call their subjucation by the French-speaking Walloons, draws back as he is jeered by a crowd of Walloons on the pavement in a Brussels Street, on October 14, 1962. The Flemish demonstrators clashed with Walloon counter demonstrators as riot police sought to maintain order. The Flemings claim that although they form 60% of the population in Belgium, they are inadequately represented in the government, and they say, the Walloons get most of the top jobs in the armed forces and the diplomatic service. (Photo by AP Photo)
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16 Oct 2015 08:05:00
A Femen activist, Sarah Constantin, is hanged from a noose-like rope from a Paris bridge to call attention to the large number of executions in Iran as she stages a protest against visiting Iranian President Hassan Rouhani in Paris, Thursday, January 28, 2016. A near-naked woman hanging from a noose-like rope from a Paris bridge has sent a message to visiting Iranian President Hassan Rouhani. (Photo by Zacharie Scheurer/AP Photo)

A Femen activist, Sarah Constantin, is hanged from a noose-like rope from a Paris bridge to call attention to the large number of executions in Iran as she stages a protest against visiting Iranian President Hassan Rouhani in Paris, Thursday, January 28, 2016. A near-naked woman hanging from a noose-like rope from a Paris bridge has sent a message to visiting Iranian President Hassan Rouhani. (Photo by Zacharie Scheurer/AP Photo)
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29 Jan 2016 13:28:00