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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. (Photo by Daniel Ochoa de Olza/AP Photo)

A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. The festivity of the Maya comes from pagan rites and dates from the medieval age, appearing in ancient documents, it takes place every year in the beginning of May and celebrates the beginning off the spring. A girl between 7 and 11years is chosen as “Maya” and should sit still, serious, and quiet for a couple of hours in an altar on the street decorated with flowers and plants, afterwards they walk to the church with their family where they attend a ceremony. (Photo by Daniel Ochoa de Olza/AP Photo)
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13 May 2014 10:17:00
Young girls take ballet lessons at the New Dreams dance studio in the Luz neighborhood known to locals as Cracolandia (Crackland) in Sao Paulo, Brazil, August 14, 2015. (Photo by Nacho Doce/Reuters)

Young girls take ballet lessons at the New Dreams dance studio in the Luz neighborhood known to locals as Cracolandia (Crackland) in Sao Paulo, Brazil, August 14, 2015. For the young girls learning to jump and plie, the dance studio provides a way forward and out of the difficult environment they have grown up in. Brazil is one of the world's highest consuming countries of crack cocaine, and Cracolandia, or “Crack Land”, located in the outskirts of Sao Paulo, is one of the most intense and brutal hubs. (Photo by Nacho Doce/Reuters)
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18 Aug 2015 13:59:00
Palestinian girl Manar Al-Shinbari (R), 15, who lost her both legs by what medics said was Israeli shelling at a UN-run school where she was taking refuge during the 50-day war last summer, is helped by her sister to put on her headscarf in an apartment in Jabaliya refugee camp in the northern Gaza Strip January 13, 2015. (Photo by Mohammed Salem/Reuters)

Palestinian girl Manar Al-Shinbari (R), 15, who lost her both legs by what medics said was Israeli shelling at a UN-run school where she was taking refuge during the 50-day war last summer, is helped by her sister to put on her headscarf in an apartment in Jabaliya refugee camp in the northern Gaza Strip January 13, 2015. Manar's mother and three of her brothers were killed in the same incident. The girl's family house was destroyed by Israeli shelling during the war. (Photo by Mohammed Salem/Reuters)
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14 Jan 2015 12:34:00
A young girl takes selfie with Easter rabbit sculpture during the Easter eggs (Pysanka) and rabbit exhibition in front of St. Sophia Cathedral in Kiev, Ukraine, 05 April 2018. Ukrainians will mark Orthodox Easter on 08 April 2018, according to Julian calendar. (Photo by Sergey Dolzhenko/EPA/EFE/Rex Features/Shutterstock)

A young girl takes selfie with Easter rabbit sculpture during the Easter eggs (Pysanka) and rabbit exhibition in front of St. Sophia Cathedral in Kiev, Ukraine, 05 April 2018. Ukrainians will mark Orthodox Easter on 08 April 2018, according to Julian calendar. (Photo by Sergey Dolzhenko/EPA/EFE/Rex Features/Shutterstock)
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10 Apr 2018 09:03:00
A rainbow arcs over a girl on the platform of Stadion station. (Photo by Conor MacNeill/The Observer)

Beneath the Swedish capital lies an intricate web of underground train lines. More than 90 of the 100 stations in the 110km tunnel system, sometimes referred to as “the world’s longest art gallery”, have been decorated with paintings, installations, mosaics and sculptures by 150 artists since the 1950s. After spending a couple of weeks exploring arctic Norway and Sweden, London-based travel photographer Conor MacNeill headed underground to capture images of the metro stations. Here: A rainbow arcs over a girl on the platform of Stadion station. (Photo by Conor MacNeill/The Observer)
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05 Jun 2016 13:21:00
A girl washes the body paint off her arm on the shore of Lake Balaton during the coinciding Strand Festival and B.My.Lake Festival in Zamardi, 110 kms southwest of Budapest, Hungary, 24 August 2016. (Photo by Zoltan Balogh/EPA)

A girl washes the body paint off her arm on the shore of Lake Balaton during the coinciding Strand Festival and B.My.Lake Festival in Zamardi, 110 kms southwest of Budapest, Hungary, 24 August 2016. (Photo by Zoltan Balogh/EPA)
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26 Aug 2016 11:18:00
A girl poses at an entrance of her house next to a bomb dropped by the U.S. Air Force planes during the Vietnam War, in the village of Ban Napia in Xieng Khouang province, Laos September 3, 2016. (Photo by Jorge Silva/Reuters)

A girl poses at an entrance of her house next to a bomb dropped by the U.S. Air Force planes during the Vietnam War, in the village of Ban Napia in Xieng Khouang province, Laos September 3, 2016. From 1964 to 1973, U.S. warplanes dropped more than 270 million cluster munitions on Laos, one-third of which did not explode, according to the Lao National Regulatory Authority. (Photo by Jorge Silva/Reuters)
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06 Sep 2016 10:30:00