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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. (Photo by Daniel Ochoa de Olza/AP Photo)

A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. The festivity of the Maya comes from pagan rites and dates from the medieval age, appearing in ancient documents, it takes place every year in the beginning of May and celebrates the beginning off the spring. A girl between 7 and 11years is chosen as “Maya” and should sit still, serious, and quiet for a couple of hours in an altar on the street decorated with flowers and plants, afterwards they walk to the church with their family where they attend a ceremony. (Photo by Daniel Ochoa de Olza/AP Photo)
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13 May 2014 10:17:00
Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. Currently there is widespread fear that the Taliban who already control around half the country will reintroduce its notorious system barring girls and women from almost all work, and access to education. The Ministry of Education has announced the opening of schools, but there are  mixed reports in many areas where the Taliban have taken control or where fighting is ongoing. (Photo by Paula Bronstein/Getty Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)
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12 Aug 2021 08:41:00
Young girls take ballet lessons at the New Dreams dance studio in the Luz neighborhood known to locals as Cracolandia (Crackland) in Sao Paulo, Brazil, August 14, 2015. (Photo by Nacho Doce/Reuters)

Young girls take ballet lessons at the New Dreams dance studio in the Luz neighborhood known to locals as Cracolandia (Crackland) in Sao Paulo, Brazil, August 14, 2015. For the young girls learning to jump and plie, the dance studio provides a way forward and out of the difficult environment they have grown up in. Brazil is one of the world's highest consuming countries of crack cocaine, and Cracolandia, or “Crack Land”, located in the outskirts of Sao Paulo, is one of the most intense and brutal hubs. (Photo by Nacho Doce/Reuters)
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18 Aug 2015 13:59:00
Palestinian girl Manar Al-Shinbari (R), 15, who lost her both legs by what medics said was Israeli shelling at a UN-run school where she was taking refuge during the 50-day war last summer, is helped by her sister to put on her headscarf in an apartment in Jabaliya refugee camp in the northern Gaza Strip January 13, 2015. (Photo by Mohammed Salem/Reuters)

Palestinian girl Manar Al-Shinbari (R), 15, who lost her both legs by what medics said was Israeli shelling at a UN-run school where she was taking refuge during the 50-day war last summer, is helped by her sister to put on her headscarf in an apartment in Jabaliya refugee camp in the northern Gaza Strip January 13, 2015. Manar's mother and three of her brothers were killed in the same incident. The girl's family house was destroyed by Israeli shelling during the war. (Photo by Mohammed Salem/Reuters)
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14 Jan 2015 12:34:00
A girl takes part in the “Burial of arrogance and haughtiness” carnival during the IX Poetry Festival in Granada, 45 km from Managua, Nicaragua on February 20, 2013. In this occasion the festival is dedicated to Nicaraguan poet Ernesto Cardenal. (Photo by Hector Retamal/AFP Photo)

Granada’s International Poetry Festival is an extraordinary celebration of poetry that takes place across the entire city. For a week, every February, Granada is transformed into a virtual Capital of the World’s Poetry. Photo: A girl takes part in the “Burial of arrogance and haughtiness” carnival during the IX Poetry Festival in Granada, 45 km from Managua, Nicaragua on February 20, 2013. In this occasion the festival is dedicated to Nicaraguan poet Ernesto Cardenal. (Photo by Hector Retamal/AFP Photo)
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21 Feb 2013 08:38:00
Girls play with their new dolls during the distribution of free toys for low-income families and a picture on the lap of one of the Three Wise Men at Almudena Cathedral in Madrid, Spain, December 22, 2015. (Photo by Susana Vera/Reuters)

Girls play with their new dolls during the distribution of free toys for low-income families and a picture on the lap of one of the Three Wise Men at Almudena Cathedral in Madrid, Spain, December 22, 2015. Traditionally, children in Spain receive their presents delivered by the Three Wise Men on the morning of January 6 during the Christian holiday of the Epiphany. (Photo by Susana Vera/Reuters)
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24 Dec 2015 08:04:00
A girl runs from waves crashing over the promenade on December 24, 2015 in Blackpool, England. The Met Office is warning of 80mph winds and torrential downpours over the Christmas holidays, as dozens of flood alerts are issued for already devastated regions. (Photo by Nigel Roddis/Getty Images)

A girl runs from waves crashing over the promenade on December 24, 2015 in Blackpool, England. The Met Office is warning of 80mph winds and torrential downpours over the Christmas holidays, as dozens of flood alerts are issued for already devastated regions. (Photo by Nigel Roddis/Getty Images)
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25 Dec 2015 12:08:00