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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. (Photo by Daniel Ochoa de Olza/AP Photo)

A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. The festivity of the Maya comes from pagan rites and dates from the medieval age, appearing in ancient documents, it takes place every year in the beginning of May and celebrates the beginning off the spring. A girl between 7 and 11years is chosen as “Maya” and should sit still, serious, and quiet for a couple of hours in an altar on the street decorated with flowers and plants, afterwards they walk to the church with their family where they attend a ceremony. (Photo by Daniel Ochoa de Olza/AP Photo)
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13 May 2014 10:17:00
Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. Currently there is widespread fear that the Taliban who already control around half the country will reintroduce its notorious system barring girls and women from almost all work, and access to education. The Ministry of Education has announced the opening of schools, but there are  mixed reports in many areas where the Taliban have taken control or where fighting is ongoing. (Photo by Paula Bronstein/Getty Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)
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12 Aug 2021 08:41:00
People release floating lanterns during the festival of Yee Peng in the northern capital of Chiang Mai, Thailand November 14, 2016. Yi Peng refers to the full moon day in the second month according to the Lanna lunar calendar (the twelfth month according to the Thai lunar calendar). Swarms of Lanna-style sky lanterns are launched into the air where they resemble large shoals of giant fluorescent jellyfish gracefully floating through the sky. The festival is meant as a time for tham bun, to make merit. Khom loi are made from a thin fabric, such as rice paper, stretched over a bamboo or wire frame, to which a candle or fuel cell is attached. When the fuel cell is lit, the resulting hot air is trapped inside the lantern and creates enough lift for the khom loi to float up into the sky. (Photo by Athit Perawongmetha/Reuters)

People release floating lanterns during the festival of Yee Peng in the northern capital of Chiang Mai, Thailand November 14, 2016. Yi Peng refers to the full moon day in the second month according to the Lanna lunar calendar (the twelfth month according to the Thai lunar calendar). Swarms of Lanna-style sky lanterns are launched into the air where they resemble large shoals of giant fluorescent jellyfish gracefully floating through the sky. The festival is meant as a time for tham bun, to make merit. Khom loi are made from a thin fabric, such as rice paper, stretched over a bamboo or wire frame, to which a candle or fuel cell is attached. When the fuel cell is lit, the resulting hot air is trapped inside the lantern and creates enough lift for the khom loi to float up into the sky. (Photo by Athit Perawongmetha/Reuters)
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15 Nov 2016 11:54:00
Lava erupts from the Piton de la Fournaise “Peak of the Furnace” volcano, on the southeastern corner of the Indian Ocean island of Reunion Saturday, August 1, 2015. Spewing red-hot lava, one of the most active volcanoes in the world is currently erupting on this Indian Ocean island, where the world's attention has been focused since a wing fragment believed to be from the missing Malaysian jet was discovered washed up on a beach. (Photo by Ben Curtis/AP Photo)

Lava erupts from the Piton de la Fournaise “Peak of the Furnace” volcano, on the southeastern corner of the Indian Ocean island of Reunion Saturday, August 1, 2015. Spewing red-hot lava, one of the most active volcanoes in the world is currently erupting on this Indian Ocean island, where the world's attention has been focused since a wing fragment believed to be from the missing Malaysian jet was discovered washed up on a beach. The lava fountains are shooting as high as 40 meters (44 yards) and are creating cones that are about 20 meters high after only one day of eruption, said Peltier. The volcano is in the Reunion National Park – a world heritage site. The volcano is not seen as dangerous because the lava flows down the east side of the mountain through an uninhabited area called the Grand Brule, or the Big Burned, toward the sea. The last times the volcano threatened the population was in 1977 and 1986. (Photo by Ben Curtis/AP Photo)
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03 Aug 2015 12:23:00
An incredible view of Thunderstorms light up the insides of clouds near a beautiful sky line. This is truly heavenly weather as pictures taken from an airplane cockpit reveal what pilots see from above. It looks like at cruising altitude the weather really hots up, with the flight deck revealing some amazing scenes. Thunderstorms light up the insides of clouds, lightening streaks across the sky like cracks in a windscreen, the northern lights sweep uninterrupted across the sky and the galaxy stretches on forever. The pictures were captured by senior first officer Christiaan van Heijst, a 33-year-old from the Netherlands, and his friend Daan Krans. (Photo by Christiaan van Heijst/Daan Krans/Caters News Agency)

An incredible view of Thunderstorms light up the insides of clouds near a beautiful sky line. This is truly heavenly weather as pictures taken from an airplane cockpit reveal what pilots see from above. It looks like at cruising altitude the weather really hots up, with the flight deck revealing some amazing scenes. Thunderstorms light up the insides of clouds, lightening streaks across the sky like cracks in a windscreen, the northern lights sweep uninterrupted across the sky and the galaxy stretches on forever. The pictures were captured by senior first officer Christiaan van Heijst, a 33-year-old from the Netherlands, and his friend Daan Krans. (Photo by Christiaan van Heijst/Daan Krans/Caters News Agency)
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22 Sep 2016 09:45:00
A photo made available on 14 March 2016 shows a Thai villager takes selfie photograph on drought parched land at the dried up Mae Chang reservoir in Lampang province, northern Thailand, 12 March 2016. The ruined village including ancient temple had been underwater for 34 years since the Mae Chang reservoir was built in 1982, the area has now re-emerged after water in the reservoir dried up caused by the severe drought. Thailand is facing the worst drought in decades hardest hit by El Nino phenomenon combined with seasonal hot weather. (Photo by Rungroj Yongrit/EPA)

A photo made available on 14 March 2016 shows a Thai villager takes selfie photograph on drought parched land at the dried up Mae Chang reservoir in Lampang province, northern Thailand, 12 March 2016. The ruined village including ancient temple had been underwater for 34 years since the Mae Chang reservoir was built in 1982, the area has now re-emerged after water in the reservoir dried up caused by the severe drought. Thailand is facing the worst drought in decades hardest hit by El Nino phenomenon combined with seasonal hot weather. (Photo by Rungroj Yongrit/EPA)
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28 Apr 2016 11:51:00
A dog sits in a plastic tub filled with water in Taipei, Taiwan, 28 July 2020. Betel nut seller Mr Luo, the dog's owner, said he puts his dog, a 12-year-old mixed breed called Ah Dai (Stupid), in a plastic tub filled with water whenever the weather gets hot. Ah Dai enjoys the bath and can sit in the basin for hours, according to Mr Luo. Luo has a dozen pairs of glasses for Ah Dai, so the dog wears different glasses every day and many tourists take photos of Ah Dai. (Photo by David Chang/EPA/EFE)

A dog sits in a plastic tub filled with water in Taipei, Taiwan, 28 July 2020. Betel nut seller Mr Luo, the dog's owner, said he puts his dog, a 12-year-old mixed breed called Ah Dai (Stupid), in a plastic tub filled with water whenever the weather gets hot. Ah Dai enjoys the bath and can sit in the basin for hours, according to Mr Luo. Luo has a dozen pairs of glasses for Ah Dai, so the dog wears different glasses every day and many tourists take photos of Ah Dai. (Photo by David Chang/EPA/EFE)
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15 Aug 2020 00:05:00