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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
In this February 22, 2021, file photo, climate activist Disha Ravi, 22, travels in a car as she is taken to a court in New Delhi, India. To her friends, Ravi, was most concerned about her future in a world where temperatures are rising. But her life changed last month as she became a household name in the country, dominating news coverage after police charged her with sedition, a colonial-era law which carries a sentence up to life. Her alleged crime: sharing an online document to help amplify months-long farmer protests in India on Twitter. She was released after 10 days in custody. (Photo by Dinesh Joshi/AP Photo/File)

In this February 22, 2021, file photo, climate activist Disha Ravi, 22, travels in a car as she is taken to a court in New Delhi, India. To her friends, Ravi, was most concerned about her future in a world where temperatures are rising. But her life changed last month as she became a household name in the country, dominating news coverage after police charged her with sedition, a colonial-era law which carries a sentence up to life. Her alleged crime: sharing an online document to help amplify months-long farmer protests in India on Twitter. She was released after 10 days in custody. (Photo by Dinesh Joshi/AP Photo/File)
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12 Mar 2021 09:56:00
A Hindu holy man is reflected on a mirror as he prepares a bowl of vermillion powder for devotees near “Sangam”, the confluence of holy rivers of Ganges, Yamuna and the mythical Saraswati, during the annual traditional fair of Magh Mela in Allahabad, in the northern Indian state of Uttar Pradesh, India, Tuesday, January 6, 2015. (Photo by Rajesh Kumar Singh/AP Photo)

A Hindu holy man is reflected on a mirror as he prepares a bowl of vermillion powder for devotees near “Sangam”, the confluence of holy rivers of Ganges, Yamuna and the mythical Saraswati, during the annual traditional fair of Magh Mela in Allahabad, in the northern Indian state of Uttar Pradesh, India, Tuesday, January 6, 2015. Hundreds of thousands of devout Hindus are expected to take holy dips at the confluence during the astronomically auspicious period of over 45 days celebrated as Magh Mela. (Photo by Rajesh Kumar Singh/AP Photo)
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07 Jan 2015 13:41:00
Kung Fu master Li Liangui practices 'Suogugong' Kung Fu and his wife Liang Xiaoyan (R) practices Qigong at a park in Beijing, China, June 30, 2016. (Photo by Kim Kyung-Hoon/Reuters)

Kung Fu master Li Liangui practices “Suogugong” Kung Fu and his wife Liang Xiaoyan (R) practices Qigong at a park in Beijing, China, June 30, 2016. For 50 years, kung fu master Li Liangui has been contorting his body into eye-watering positions while practising one of the more unusual and less popular Chinese martial art forms. The 70-year-old is an expert in suogugong, or body shrinking kung fu, where practitioners dislocate their bones to help them achieve unlikely positions and feats. (Photo by Kim Kyung-Hoon/Reuters)
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17 Sep 2016 10:27:00
US actress Alexandra Daddario attends the “Baywatch” Photo Call in Berlin on May 30, 2017 in Berlin, Germany. (Photo by Splash News and Pictures)

US actress Alexandra Daddario attends the “Baywatch” Photo Call in Berlin on May 30, 2017 in Berlin, Germany. (Photo by Splash News and Pictures)
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04 Jun 2017 08:15:00
Bride Yulia Tagil sits on the backseat of a bike as she arrives for her alternative wedding ceremony on a square in Tel Aviv July 25, 2010. The alternative wedding ceremony was intended to demonstrate against the current situation in Israel, where the only way for Jews to get married by law is through the Chief Rabbinate. (Photo by Nir Elias/Reuters)

Bride Yulia Tagil sits on the backseat of a bike as she arrives for her alternative wedding ceremony on a square in Tel Aviv July 25, 2010. The alternative wedding ceremony was intended to demonstrate against the current situation in Israel, where the only way for Jews to get married by law is through the Chief Rabbinate. (Photo by Nir Elias/Reuters)
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28 Aug 2013 11:40:00
People wearing face masks to help curb the spread of the coronavirus wait to walk across a traffic intersection in Osaka, western Japan, Thursday, November 26, 2020. (Photo by Hiro Komae/AP Photo)

People wearing face masks to help curb the spread of the coronavirus wait to walk across a traffic intersection in Osaka, western Japan, Thursday, November 26, 2020. (Photo by Hiro Komae/AP Photo)
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08 Dec 2020 00:05:00
Ivan Shamyanok, 90, shaves in his house in the village of Tulgovichi, near the exclusion zone around the Chernobyl nuclear reactor, Belarus March 15, 2016. “My sister lived here with her husband. They decided to leave and soon enough they were in the ground ... They died from anxiety. I'm not anxious. I sing a little, take a turn in the yard, take things slowly like this and I live”, he said. (Photo by Vasily Fedosenko/Reuters)

Ivan Shamyanok, 90, shaves in his house in the village of Tulgovichi, near the exclusion zone around the Chernobyl nuclear reactor, Belarus March 15, 2016. “My sister lived here with her husband. They decided to leave and soon enough they were in the ground ... They died from anxiety. I'm not anxious. I sing a little, take a turn in the yard, take things slowly like this and I live”, he said. (Photo by Vasily Fedosenko/Reuters)
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27 Apr 2016 09:50:00