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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
Hair stylist Marcelo Avatte (R) prepares to fit Isidora Serrano, a 14-year-old who lost her hair due to chemotherapy to treat her bone cancer, with a natural hair wig in the cancer ward of the Luis Calvo Mackenna Hospital in Santiago, October 23, 2014. (Photo by Rodrigo Garrido/Reuters)

Hair stylist Marcelo Avatte (R) prepares to fit Isidora Serrano, a 14-year-old who lost her hair due to chemotherapy to treat her bone cancer, with a natural hair wig in the cancer ward of the Luis Calvo Mackenna Hospital in Santiago, October 23, 2014. The wigs, handmade by Italian-Chilean hair stylist Marcelo Avatte and his team, have helped the children regain their self-esteem and confidence during cancer treatment. Renowned for making customised wigs, Avatte has donated more than 300 wigs since 2009 and says he was motivated to begin the project by the pain he felt when his own son lost his hair during chemotherapy. (Photo by Rodrigo Garrido/Reuters)
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18 Nov 2014 11:33:00
Attendants arrive at an inauguration ceremony of a Hello Kitty amusement park in Anji, Zhejiang province November 28, 2014. With an investment of $325 million, Hello Kitty Park will be China's first large scale amusement park scheduled to open to the public on New Year's day. According to state media, there are nearly 60 theme parks being built across China at the moment. (Photo by Carlos Barria/Reuters)

Attendants arrive at an inauguration ceremony of a Hello Kitty amusement park in Anji, Zhejiang province November 28, 2014. With an investment of $325 million, Hello Kitty Park will be China's first large scale amusement park scheduled to open to the public on New Year's day. According to state media, there are nearly 60 theme parks being built across China at the moment. (Photo by Carlos Barria/Reuters)
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30 Nov 2014 12:23:00
A woman attends a boxing class at Princess Women's Boxing Club in Shanghai December 3, 2014. Women have boxed as long as the sport has existed but for years they were relegated out of national and international competitions in many countries around the world. Female boxers entered the ring in an exhibition match at the 1904 Olympic Games, but it was more than a century later when they were given the green light to make their Olympic debut in London in 2012. (Photo by Carlos Barria/Reuters)

A woman attends a boxing class at Princess Women's Boxing Club in Shanghai December 3, 2014. Women have boxed as long as the sport has existed but for years they were relegated out of national and international competitions in many countries around the world. Female boxers entered the ring in an exhibition match at the 1904 Olympic Games, but it was more than a century later when they were given the green light to make their Olympic debut in London in 2012. (Photo by Carlos Barria/Reuters)
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10 Dec 2014 12:46:00
Members of the Compagnie 1602 take part in a procession in Geneva December 14, 2014. The annual procession of the Fete de l'Escalade has been held since 1926 and commemorates local resistance to the December 11, 1602 surprise attack by the troops of the Duke of Savoy. (Photo by Pierre Albouy/Reuters)

Members of the Compagnie 1602 take part in a procession in Geneva December 14, 2014. The annual procession of the Fete de l'Escalade has been held since 1926 and commemorates local resistance to the December 11, 1602 surprise attack by the troops of the Duke of Savoy. A popular symbol of the resistance is the figure of Mere Royaume pouring hot soup from her caldron onto the soldiers. A chocolate replica of the cauldron is widely available during the three-day celebrations. This year marks also the 200-year anniversary of the entry of the Canton of Geneva in the Swiss Confederation. (Photo by Pierre Albouy/Reuters)
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15 Dec 2014 11:08:00
Visitors watch as Grigory Broverman, a member of the Cryophile winter swimmers club, pours a bucket of cold water over his 6-year-old daughter Liza during a flash mob, part of a celebration of Polar Bear Day at the Royev Ruchey Zoo in a suburb of the Siberian city of Krasnoyarsk, Russia, November 29, 2015. The air temperature was around minus 5 degrees Celsius. (Photo by Ilya Naymushin/Reuters)

Visitors watch as Grigory Broverman, a member of the Cryophile winter swimmers club, pours a bucket of cold water over his 6-year-old daughter Liza during a flash mob, part of a celebration of Polar Bear Day at the Royev Ruchey Zoo in a suburb of the Siberian city of Krasnoyarsk, Russia, November 29, 2015. The air temperature was around minus 5 degrees Celsius. (Photo by Ilya Naymushin/Reuters)
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08 Jan 2016 08:06:00
In this January 7, 2016, photo, conservationists of Borneo Orangutan Survival Foundation hold a baby orangutan rescued along with its mother during a rescue and release operation for orangutans trapped in a swath of jungle in Sungai Mangkutub, Central Kalimantan, Indonesia. Last year's forest fires drove orangutans closer to the river bank, where they had to live in an over-populated swath of forest as thin as 30 meters wide along the river. (Photo by Dita Alangkara/AP Photo)

In this January 7, 2016, photo, conservationists of Borneo Orangutan Survival Foundation hold a baby orangutan rescued along with its mother during a rescue and release operation for orangutans trapped in a swath of jungle in Sungai Mangkutub, Central Kalimantan, Indonesia. Last year's forest fires drove orangutans closer to the river bank, where they had to live in an over-populated swath of forest as thin as 30 meters wide along the river. (Photo by Dita Alangkara/AP Photo)
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25 Jan 2016 11:36:00
An Iranian man sells colorful ropes at  the Tehrans old Bazaar, the place where the main economy trades take place, in Tehran, Iran, 25 January 2016. Reports state that Iranian officials expected the Iranian economy to grow on an average of eight percent over the coming five years following the lifting of sanctions against Iran. (Photo by Abedin Taherkenareh/EPA)

An Iranian man sells colorful ropes at the Tehrans old Bazaar, the place where the main economy trades take place, in Tehran, Iran, 25 January 2016. Reports state that Iranian officials expected the Iranian economy to grow on an average of eight percent over the coming five years following the lifting of sanctions against Iran. (Photo by Abedin Taherkenareh/EPA)
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02 Feb 2016 12:53:00