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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. (Photo by Daniel Ochoa de Olza/AP Photo)

A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. The festivity of the Maya comes from pagan rites and dates from the medieval age, appearing in ancient documents, it takes place every year in the beginning of May and celebrates the beginning off the spring. A girl between 7 and 11years is chosen as “Maya” and should sit still, serious, and quiet for a couple of hours in an altar on the street decorated with flowers and plants, afterwards they walk to the church with their family where they attend a ceremony. (Photo by Daniel Ochoa de Olza/AP Photo)
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13 May 2014 10:17:00
Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. Currently there is widespread fear that the Taliban who already control around half the country will reintroduce its notorious system barring girls and women from almost all work, and access to education. The Ministry of Education has announced the opening of schools, but there are  mixed reports in many areas where the Taliban have taken control or where fighting is ongoing. (Photo by Paula Bronstein/Getty Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)
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12 Aug 2021 08:41:00
A Syrian refugee girl covers herself with a blanket as she stands outside tents at a makeshift settlement in Bar Elias in the Bekaa valley January 5, 2015. Lebanon enforced new immigration controls at the Syrian border on Monday in a move to gain control of the steady stream of refugees from its much larger neighbour. (Photo by Mohamed Azakir/Reuters)

A Syrian refugee girl covers herself with a blanket as she stands outside tents at a makeshift settlement in Bar Elias in the Bekaa valley January 5, 2015. Lebanon enforced new immigration controls at the Syrian border on Monday in a move to gain control of the steady stream of refugees from its much larger neighbour. (Photo by Mohamed Azakir/Reuters)
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06 Jan 2015 11:56:00
A girl with Russian national flags painted on her cheeks takes part in celebrations marking the first anniversary of Russia's annexation of Crimea, in central Simferopol March 16, 2015. (Photo by Maxim Shemetov/Reuters)

A girl with Russian national flags painted on her cheeks takes part in celebrations marking the first anniversary of Russia's annexation of Crimea, in central Simferopol March 16, 2015. Russia marks one year anniversary of annexation of Ukraine's Crimea peninsula this week. (Photo by Maxim Shemetov/Reuters)
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18 Mar 2015 11:30:00
A girl flashes a victory sign as she poses near a helicopter that belongs to forces loyal to Syria's President Bashar Al-Assad after it crashed in Jabal al-Zawiya in the southern countryside of Idlib  March 22, 2015. (Photo by Abed Kontar/Reuters)

A girl flashes a victory sign as she poses near a helicopter that belongs to forces loyal to Syria's President Bashar Al-Assad after it crashed in Jabal al-Zawiya in the southern countryside of Idlib March 22, 2015. The Syrian military helicopter crashed in northwestern Syria on Sunday and at least four of its crew were captured by rebels, according to a monitoring group. (Photo by Abed Kontar/Reuters)
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28 Mar 2015 11:34:00
An Egyptian Coptic Christian girl carries palm decoration during Palm Sunday inside a church in Old Cairo, April 5, 2015. (Photo by Asmaa Waguih/Reuters)

An Egyptian Coptic Christian girl carries palm decoration during Palm Sunday inside a church in Old Cairo, Egypt, April 5, 2015. For Christians worldwide, Palm Sunday marks Jesus Christ's entrance into Jerusalem, when his followers laid palm branches in his path, prior to his crucifixion. Western Christian churches and most Orthodox Christian churches follow different calendars and observe Easter on different dates. (Photo by Asmaa Waguih/Reuters)
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06 Apr 2015 09:20:00
A girl takes part in the “Burial of arrogance and haughtiness” carnival during the IX Poetry Festival in Granada, 45 km from Managua, Nicaragua on February 20, 2013. In this occasion the festival is dedicated to Nicaraguan poet Ernesto Cardenal. (Photo by Hector Retamal/AFP Photo)

Granada’s International Poetry Festival is an extraordinary celebration of poetry that takes place across the entire city. For a week, every February, Granada is transformed into a virtual Capital of the World’s Poetry. Photo: A girl takes part in the “Burial of arrogance and haughtiness” carnival during the IX Poetry Festival in Granada, 45 km from Managua, Nicaragua on February 20, 2013. In this occasion the festival is dedicated to Nicaraguan poet Ernesto Cardenal. (Photo by Hector Retamal/AFP Photo)
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21 Feb 2013 08:38:00