Rahma, 19 (L), pictured with her 10-year old brother Fahad on June 21, 2016 in Kano, Nigeria. A teenage girl born without limbs lives her life in a plastic bowl. Rahma Haruna is a bright, happy girl, despite suffering from a mystery condition that stopped her arms and legs developing properly – leaving her practically limbless and in constant pain. The 19-year- old, from Kano, Nigeria, was born a healthy baby but when she turned six months old her growth came to a sudden halt and she stopped hitting key development milestones. Rahma’s family do their best to provide her with a fulfilling life and transport her around the village in a plastic bowl. Rahma said: “They help me a lot. How do they? They give me anything I need”. Rahma died on 25 December 2016. (Photo by Sani Maikatanga/Barcroft Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)

A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. The festivity of the Maya comes from pagan rites and dates from the medieval age, appearing in ancient documents, it takes place every year in the beginning of May and celebrates the beginning off the spring. A girl between 7 and 11years is chosen as “Maya” and should sit still, serious, and quiet for a couple of hours in an altar on the street decorated with flowers and plants, afterwards they walk to the church with their family where they attend a ceremony. (Photo by Daniel Ochoa de Olza/AP Photo)

A girl watches as Saen Dao, an eight-year-old female asian elephant, and her mahout perform underwater during a show at the Khao Kheow Open Zoo in Chonburi south of Bangkok on June 1, 2017. (Photo by Roberto Schmidt/AFP Photo)

Girls play with their new dolls during the distribution of free toys for low-income families and a picture on the lap of one of the Three Wise Men at Almudena Cathedral in Madrid, Spain, December 22, 2015. Traditionally, children in Spain receive their presents delivered by the Three Wise Men on the morning of January 6 during the Christian holiday of the Epiphany. (Photo by Susana Vera/Reuters)

A girl runs from waves crashing over the promenade on December 24, 2015 in Blackpool, England. The Met Office is warning of 80mph winds and torrential downpours over the Christmas holidays, as dozens of flood alerts are issued for already devastated regions. (Photo by Nigel Roddis/Getty Images)

A girl gives a dog ice cream at dog beach and bar in Crikvenica, Croatia, July 12, 2016. The first Croatian beach bar specifically designed for dogs opens in the northern Adriatic town of Crikvenica, enabling canines and their owners to experience the joys of summertime together. Located at one of the few dog friendly beaches in the country, the bar's offer includes specially prepared ice cream, dog beer and snacks. (Photo by Antonio Bronic/Reuters)