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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. (Photo by Daniel Ochoa de Olza/AP Photo)

A “Maya” girl sits in an altar during the traditional celebration of “Las Mayas” on the streets in Colmenar Viejo, near Madrid, Spain, Friday, May 2, 2014. The festivity of the Maya comes from pagan rites and dates from the medieval age, appearing in ancient documents, it takes place every year in the beginning of May and celebrates the beginning off the spring. A girl between 7 and 11years is chosen as “Maya” and should sit still, serious, and quiet for a couple of hours in an altar on the street decorated with flowers and plants, afterwards they walk to the church with their family where they attend a ceremony. (Photo by Daniel Ochoa de Olza/AP Photo)
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13 May 2014 10:17:00
Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. Currently there is widespread fear that the Taliban who already control around half the country will reintroduce its notorious system barring girls and women from almost all work, and access to education. The Ministry of Education has announced the opening of schools, but there are  mixed reports in many areas where the Taliban have taken control or where fighting is ongoing. (Photo by Paula Bronstein/Getty Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)
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12 Aug 2021 08:41:00
Smoke rises from a house days after part of the ground it was resting on collapsed into Lake Whitney, Texas in this June 13, 2014 file photo. I was covering the controlled burn of a house slowly falling into Lake Whitney due to the decaying cliff underneath.  Asked to take photos from an aerial perspective, an instructor and I took off from Grand Prairie Municipal Airport around 9am. (Photo and caption by Brandon Wade/Reuters)

Smoke rises from a house days after part of the ground it was resting on collapsed into Lake Whitney, Texas in this June 13, 2014 file photo. I was covering the controlled burn of a house slowly falling into Lake Whitney due to the decaying cliff underneath. Asked to take photos from an aerial perspective, an instructor and I took off from Grand Prairie Municipal Airport around 9am. The burn, scheduled to start an hour later, was delayed. I love flying, but patience proved challenging as circling for nearly three hours gets boring fast. Once the fire started we only had 15 minutes to take photos because the plane was booked at 1pm. The owners invested their retirement savings in the house and were even advised by geologists that the ground was stable. To watch your investment literally go up in flames must take its toll emotionally. The owners said they don't expect their insurance to cover the loss. (Photo and caption by Brandon Wade/Reuters)
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27 Nov 2014 15:01:00
Palestinian barber Ramadan Odwan styles and straightens the hair of a customer with fire at his salon in Rafah, in the southern Gaza Strip February 2, 2017. In Ramadan Odwan's barbershop in Gaza, hair isn't just blow-dried, it's blowtorch-dried. “People have gone crazy about it, many people are curious to go through the experience and they are not afraid”, he told Reuters. “People here love adventures”. Odwan, 37, is not the first stylist in the world to use flame to straighten hair, but his craft is unique in the Gaza Strip. In his salon in the southern Gaza town of Rafah, Odwan applied what he described as a protective liquid coating to a customer's hair – he declined to disclose its contents – before aiming for the head and pressing the button on a small blowtorch. “I control how long I apply fire, I keep it on and off for 10 seconds or 15 seconds. It is completely safe and I have not encountered any accident since I started it two months ago”, Odwan added. Odwan charges 20 shekels ($5.20) for a haircut and fire-straightening. A barber for the past 18 years, he said part of the reason he uses the technique is to show that Palestinian barbers are as “professional as those out there around the world”. (Photo by Ibraheem Abu Mustafa/Reuters)

Palestinian barber Ramadan Odwan styles and straightens the hair of a customer with fire at his salon in Rafah, in the southern Gaza Strip February 2, 2017. In Ramadan Odwan's barbershop in Gaza, hair isn't just blow-dried, it's blowtorch-dried. “People have gone crazy about it, many people are curious to go through the experience and they are not afraid”, he told Reuters. “People here love adventures”. (Photo by Ibraheem Abu Mustafa/Reuters)
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11 Feb 2017 00:05:00
Palestinian girl Manar Al-Shinbari (R), 15, who lost her both legs by what medics said was Israeli shelling at a UN-run school where she was taking refuge during the 50-day war last summer, is helped by her sister to put on her headscarf in an apartment in Jabaliya refugee camp in the northern Gaza Strip January 13, 2015. (Photo by Mohammed Salem/Reuters)

Palestinian girl Manar Al-Shinbari (R), 15, who lost her both legs by what medics said was Israeli shelling at a UN-run school where she was taking refuge during the 50-day war last summer, is helped by her sister to put on her headscarf in an apartment in Jabaliya refugee camp in the northern Gaza Strip January 13, 2015. Manar's mother and three of her brothers were killed in the same incident. The girl's family house was destroyed by Israeli shelling during the war. (Photo by Mohammed Salem/Reuters)
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14 Jan 2015 12:34:00
Young girls take ballet lessons at the New Dreams dance studio in the Luz neighborhood known to locals as Cracolandia (Crackland) in Sao Paulo, Brazil, August 14, 2015. (Photo by Nacho Doce/Reuters)

Young girls take ballet lessons at the New Dreams dance studio in the Luz neighborhood known to locals as Cracolandia (Crackland) in Sao Paulo, Brazil, August 14, 2015. For the young girls learning to jump and plie, the dance studio provides a way forward and out of the difficult environment they have grown up in. Brazil is one of the world's highest consuming countries of crack cocaine, and Cracolandia, or “Crack Land”, located in the outskirts of Sao Paulo, is one of the most intense and brutal hubs. (Photo by Nacho Doce/Reuters)
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18 Aug 2015 13:59:00
Girls dressed up in traditional Egyptian clothes from the early 20th century pose for a picture before they get their photos taken on the historical Al-Moez street of Islamic Cairo, Egypt, January 17, 2016. (Photo by Asmaa Waguih/Reuters)

Girls dressed up in traditional Egyptian clothes from the early 20th century pose for a picture before they get their photos taken on the historical Al-Moez street of Islamic Cairo, Egypt, January 17, 2016. (Photo by Asmaa Waguih/Reuters)
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20 Feb 2016 10:25:00