Rahma, 19 (L), pictured with her 10-year old brother Fahad on June 21, 2016 in Kano, Nigeria. A teenage girl born without limbs lives her life in a plastic bowl. Rahma Haruna is a bright, happy girl, despite suffering from a mystery condition that stopped her arms and legs developing properly – leaving her practically limbless and in constant pain. The 19-year- old, from Kano, Nigeria, was born a healthy baby but when she turned six months old her growth came to a sudden halt and she stopped hitting key development milestones. Rahma’s family do their best to provide her with a fulfilling life and transport her around the village in a plastic bowl. Rahma said: “They help me a lot. How do they? They give me anything I need”. Rahma died on 25 December 2016. (Photo by Sani Maikatanga/Barcroft Images)

After finding the bricklaying business too full of ups and downs, this amazing young girl decided to take a shot at iron girdering for a change. She is Miss “Collie” Collier, a reporter for the Chicago Herald-Examiner. August 17, 1920. (Photo by Bettmann Archive/Getty Images)

Girls from the Miao ethnic group dress up in ethnic costumes to celebrate the traditional Lusheng Festival on December 12, 2022 in Congjiang County, Qiandongnan Miao and Dong Autonomous Prefecture, Guizhou Province of China. (Photo by Mo Xiaoshu/VCG via Getty Images)

Young girls practice acrobatic skills in the Sichuan Provincial Art School July 14, 2008 in Chengdu of Sichuan Province, China. (Photo by China Photos/Getty Images)

A young Chinese girl kicks during a kung-fu class at Ritan Park on June 11, 2016 in Beijing, China. Ritan, meaning “sun altar”, is among the oldest parks in Beijing, built in the early 1500s during the Ming dynasty for the emperor to make sacrifices to the sun. (Photo by Kevin Frayer/Getty Images)

A girl holds a blossom in her mouth while posing for photos under cherry blossom trees at Wuhan University on March 11, 2021 in Wuhan, China. Tourists come to view cherry blossoms at the university during the spring. Wuhan University, first founded in 1893, is widely known as one of the most beautiful universities in China. (Photo by Getty Images/China Stringer Network)

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)

Actress Penelope Cruz (L) and actor Johnny Depp arrive at premiere of Walt Disney Pictures' “Pirates of the Caribbean: On Stranger Tides” held at Disneyland on May 7, 2011 in Anaheim, California. Proceeds from the world premiere of Walt Disney Pictures' “Pirates Of The Caribbean: On Stranger Tides” will benefit the Boys & Girls Clubs of America. (Photo by Kevin Winter/Getty Images)