Rahma, 19 (L), pictured with her 10-year old brother Fahad on June 21, 2016 in Kano, Nigeria. A teenage girl born without limbs lives her life in a plastic bowl. Rahma Haruna is a bright, happy girl, despite suffering from a mystery condition that stopped her arms and legs developing properly – leaving her practically limbless and in constant pain. The 19-year- old, from Kano, Nigeria, was born a healthy baby but when she turned six months old her growth came to a sudden halt and she stopped hitting key development milestones. Rahma’s family do their best to provide her with a fulfilling life and transport her around the village in a plastic bowl. Rahma said: “They help me a lot. How do they? They give me anything I need”. Rahma died on 25 December 2016. (Photo by Sani Maikatanga/Barcroft Images)

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)

Nine year old girl Barsati reacts while walking on a tightrope in Mumbai on February 11, 2014. Barsati, and her younger brother Rajababu, (4) earn an average of around 2000 rupees (32 dollars) per day from pedestrians and tourists performing various acts on the tightrope near the city's iconic landmark Gateway of India. (Photo by Indranil Mukherjee/AFP Photo)

In this photo taken on Wednesday, January 9, 2013, ahead of the Chinese lunar new year of the Snake, following the Chinese zodiac, genetically modified, auspicious, white snakes slither across the altar at the Temple of White Snakes in Taoyuan county, in north western Taiwan. Director of the temple Mr. Lo Chin-shih says the new year of the snake would be a time of steady progress, in contrast to the more turbulent nature of the outgoing year of the dragon. The Chinese new year fall on February 10. (Photo by Wally Santana/AP Photo)

In this August 28, 1963 file photo, the top of the Washington Monument and part of a U.S. flag are reflected in the sunglasses of Austin Clinton Brown, 9, of Gainesville, Ga., as he poses at the Capitol where he joins others in the March on Washington. (Photo by AFP Photo)

Two baby orangutans play with each other at the wildlife department in Kuala Lumpur, Malayasia, October 19, 2015. The Malaysian wildlife department in July seized two baby Sumatran orangutans, found in duffel bags, from traffickers who were attempting to sell them to buyers in Malaysia. According to local media, the orangutans will be returned to Medan, Indonesia on Tuesday. The illegal wildlife trade is estimated to be $8 billion a year worldwide, according to TRAFFIC, a wildlife trade monitoring network. (Photo by Olivia Harris/Reuters)

Peruvian shamans holding a poster of Russia's President Vladimir Putin perform a ritual of predictions for the new year at Morro Solar hill in Chorrillos, Lima, Peru, December 29, 2015. The ritual is an end-of-the-year tradition and the shamans called for world peace and wished good luck for the upcoming elections in Peru and the U.S. (Photo by Mariana Bazo/Reuters)