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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
Wax figures with torture instrument named “torture-rack” are seen on October 25, 2014 in Huai'an, Jiangsu province of China. The exhibition, which opened last year at an educational center in the eastern city of Huai'an, includes reenactments of prisoners being hung over a fire, flayed and being tortured on what is known as a “Tiger Bench” – pictured above – a Qing dynasty (1644-1912) device that contorted victims' legs and arms in high pressure positions that could break bones or tear apart joints. (Photo by ChinaFotoPress)

Organizers of an exhibition of ancient instruments of torture in Huai'an, Jiangsu province, have suggested that children, heart disease patients and people with high blood pressure stay away because of the vivid depictions of shocking cruelty. The exhibition has more than 200 instruments of torture on display in the 50,000-square-meter exhibition halls of a restored ancient building. Wax figures, along with sound and light techniques, are incorporated for scary effect. The local government said the exhibition is for tourists and historians to research ancient torture practices. (Photo by ChinaFotoPress)
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29 Oct 2014 12:22:00
Jazmin, 6, sister of Jose Luis, receives Isoniazid Preventive Therapy in Carabayllo in Lima, Peru July 14, 2016. (Photo by Mariana Bazo/Reuters)

Jazmin, 6, sister of Jose Luis, receives Isoniazid Preventive Therapy in Carabayllo in Lima, Peru July 14, 2016. At least 30,000 Peruvians are infected with tuberculosis, an ancient disease that killed 1.8 million globally last year, more than AIDS-related and malaria deaths combined. Partners in Health, a Boston-based non-profit that works with Peru's health ministry, offers a simple solution. It trains community volunteers to tend to tuberculosis sufferers in their homes – ensuring patients take medicine daily and helping them navigate the public health bureaucracy. (Photo by Mariana Bazo/Reuters)
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23 Nov 2016 11:25:00
Chinese women wear protective masks as they are dressed in traditional clothing from the Qing Dynasty era outside a park on March 29, 2020 in Beijing, China. A limited section of the iconic tourist site was re-opened to the public this week allowing a smaller number of visitors to reserve tickets online in advance and to enter after passing health screening. With the pandemic hitting hard across the world, China recorded its first day with no new domestic cases of the coronavirus last week, since the government imposed sweeping measures to keep the disease from spreading. For two months, millions of people across China have been restricted in how they move from their homes, while other cities have been locked down in ways that appeared severe at the time but are now being replicated in other countries trying to contain the virus. Officials believe the worst appears to be over in China, though there are concerns of another wave of infections as the government attempts to reboot the worlds second largest economy. In Beijing, it is mandatory to wear masks outdoors, retail stores operate on reduced hours, restaurants employ social distancing among patrons, and tourist attractions at risk of drawing large crowds remain closed. Monitoring and enforcement of virus-related measures and the quarantine of anyone arriving to Beijing is carried out by neighborhood committees and a network of Communist Party volunteers who wear red arm bands. A primary concern for Chinese authorities remains the arrival of flights from Europe and elsewhere, given the exposure of passengers in regions now regarded as hotbeds for transmission. Since January, China has recorded more than 81,000 cases of COVID-19 and at least 3200 deaths, mostly in and around the city of Wuhan, in central Hubei province, where the outbreak first started. (Photo by Kevin Frayer/Getty Images)

Chinese women wear protective masks as they are dressed in traditional clothing from the Qing Dynasty era outside a park on March 29, 2020 in Beijing, China. A limited section of the iconic tourist site was re-opened to the public this week allowing a smaller number of visitors to reserve tickets online in advance and to enter after passing health screening. (Photo by Kevin Frayer/Getty Images)
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01 Apr 2020 00:05:00
A Chinese woman wears a protective mask as she shops in a market on February 6, 2020 in Beijing, China. The number of cases of a deadly new coronavirus rose to more than 28000 in mainland China Thursday, days after the World Health Organization (WHO) declared the outbreak a global public health emergency. China continued to lock down the city of Wuhan in an effort to contain the spread of the pneumonia-like disease which medicals experts have confirmed can be passed from human to human. In an unprecedented move, Chinese authorities have put travel restrictions on the city which is the epicenter of the virus and municipalities in other parts of the country affecting tens of millions of people. The number of those who have died from the virus in China climbed to over 564 on Thursday, mostly in Hubei province, and cases have been reported in other countries including the United States, Canada, Australia, Japan, South Korea, India, the United Kingdom, Germany, France and several others. The World Health Organization has warned all governments to be on alert and screening has been stepped up at airports around the world. Some countries, including the United States, have put restrictions on Chinese travelers entering and advised their citizens against travel to China. (Photo by Kevin Frayer/Getty Images)

A Chinese woman wears a protective mask as she shops in a market on February 6, 2020 in Beijing, China. The number of cases of a deadly new coronavirus rose to more than 28000 in mainland China Thursday, days after the World Health Organization (WHO) declared the outbreak a global public health emergency. (Photo by Kevin Frayer/Getty Images)
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09 Feb 2020 00:07:00
A Chinese woman wears her dress and a protective mask as she waits to change after taking pictures in advance of her wedding near the Forbidden City, on April 30, 2020 in Beijing, China. Beijing lowered its risk level after more than three months Thursday in advance of the May holiday, allowing most domestic travellers arriving in the city to do so without having to do 14 days of quarantine. The Forbidden City will open to a limited number of visitors as of Thursday morning. After decades of growth, officials said China's economy had shrunk in the latest quarter due to the impact of the coronavirus epidemic. The slump in the world's second largest economy is regarded as a sign of difficult times ahead for the global economy. While industrial sectors in China are showing signs of reviving production, a majority of private companies are operating at only 50% capacity, according to analysts. With the pandemic hitting hard across the world, officially the number of coronavirus cases in China is dwindling, ever since the government imposed sweeping measures to keep the disease from spreading. Officials believe the worst appears to be over in China, though there are concerns of another wave of infections as the government attempts to reboot the world's second largest economy. Since January, China has recorded more than 81,000 cases of COVID-19 and at least 3,200 deaths, mostly in and around the city of Wuhan, in central Hubei province, where the outbreak first started. (Photo by Kevin Frayer/Getty Images)

A Chinese woman wears her dress and a protective mask as she waits to change after taking pictures in advance of her wedding near the Forbidden City, on April 30, 2020 in Beijing, China. Beijing lowered its risk level after more than three months Thursday in advance of the May holiday, allowing most domestic travellers arriving in the city to do so without having to do 14 days of quarantine. (Photo by Kevin Frayer/Getty Images)
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03 May 2020 00:07:00
A model waits backstage to present creations from the Fall-Winter 2021/2022 collection of the Georgiela Studio fashion brand during a young talents “EGO” fashion show on the last day of the 73rd Mercedes-Benz Fashion Week Madrid, in Madrid, Spain, 11 April 2021. The fashion event runs from 08 to 11 April. (Photo by Mariscal/EPA/EFE)

A model waits backstage to present creations from the Fall-Winter 2021/2022 collection of the Georgiela Studio fashion brand during a young talents “EGO” fashion show on the last day of the 73rd Mercedes-Benz Fashion Week Madrid, in Madrid, Spain, 11 April 2021. The fashion event runs from 08 to 11 April. (Photo by Mariscal/EPA/EFE)
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13 Apr 2021 07:43:00
Noel Brandon known as DJ IAMNOEL plays his set on a balcony in downtown San Diego, California on April 11, 2020. NOEL was inspired by other countries and wanted to give back. Residents went on their balconies at 8pm to cheer in support for the frontline workers, afterwards NOEL played his set to cheer up the locals who have been quarantined like many other cities around the world due to Coronavirus. (Photo by Ariana Drehsler/AFP Photo)

Noel Brandon known as DJ IAMNOEL plays his set on a balcony in downtown San Diego, California on April 11, 2020. NOEL was inspired by other countries and wanted to give back. Residents went on their balconies at 8pm to cheer in support for the frontline workers, afterwards NOEL played his set to cheer up the locals who have been quarantined like many other cities around the world due to Coronavirus. (Photo by Ariana Drehsler/AFP Photo)
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20 Apr 2020 00:01:00