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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. Currently there is widespread fear that the Taliban who already control around half the country will reintroduce its notorious system barring girls and women from almost all work, and access to education. The Ministry of Education has announced the opening of schools, but there are  mixed reports in many areas where the Taliban have taken control or where fighting is ongoing. (Photo by Paula Bronstein/Getty Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)
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12 Aug 2021 08:41:00
A girl takes part in the “Burial of arrogance and haughtiness” carnival during the IX Poetry Festival in Granada, 45 km from Managua, Nicaragua on February 20, 2013. In this occasion the festival is dedicated to Nicaraguan poet Ernesto Cardenal. (Photo by Hector Retamal/AFP Photo)

Granada’s International Poetry Festival is an extraordinary celebration of poetry that takes place across the entire city. For a week, every February, Granada is transformed into a virtual Capital of the World’s Poetry. Photo: A girl takes part in the “Burial of arrogance and haughtiness” carnival during the IX Poetry Festival in Granada, 45 km from Managua, Nicaragua on February 20, 2013. In this occasion the festival is dedicated to Nicaraguan poet Ernesto Cardenal. (Photo by Hector Retamal/AFP Photo)
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21 Feb 2013 08:38:00
In this undated handout photograph from the “Inside Out Project”, a poster bearing the image of a Pakistani girl whose parents, lawyers say, were killed in a drone strike, lies in a field at an undisclosed location in the northwestern Khyber-Pakhtunkhwa province. (Photo by AFP Photo)

In this undated handout photograph from the “Inside Out Project”, a poster bearing the image of a Pakistani girl whose parents, lawyers say, were killed in a drone strike, lies in a field at an undisclosed location in the northwestern Khyber-Pakhtunkhwa province. A group of artists in Pakistan are hoping to generate “empathy” among US drone operators by placing giant posters of children in the country's troubled tribal regions. (Photo by AFP Photo)
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08 Apr 2014 10:39:00
Girls play with their new dolls during the distribution of free toys for low-income families and a picture on the lap of one of the Three Wise Men at Almudena Cathedral in Madrid, Spain, December 22, 2015. (Photo by Susana Vera/Reuters)

Girls play with their new dolls during the distribution of free toys for low-income families and a picture on the lap of one of the Three Wise Men at Almudena Cathedral in Madrid, Spain, December 22, 2015. Traditionally, children in Spain receive their presents delivered by the Three Wise Men on the morning of January 6 during the Christian holiday of the Epiphany. (Photo by Susana Vera/Reuters)
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24 Dec 2015 08:04:00
A girl runs from waves crashing over the promenade on December 24, 2015 in Blackpool, England. The Met Office is warning of 80mph winds and torrential downpours over the Christmas holidays, as dozens of flood alerts are issued for already devastated regions. (Photo by Nigel Roddis/Getty Images)

A girl runs from waves crashing over the promenade on December 24, 2015 in Blackpool, England. The Met Office is warning of 80mph winds and torrential downpours over the Christmas holidays, as dozens of flood alerts are issued for already devastated regions. (Photo by Nigel Roddis/Getty Images)
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25 Dec 2015 12:08:00
A security personnel plays with a girl in the compound of a health and rest centre which serves as a temporary accommodation for refugees from eastern regions of the country in the town of Korostyshiv, Zhytomyr region, Ukraine, July 30, 2015. (Photo by Valentyn Ogirenko/Reuters)

A security personnel plays with a girl in the compound of a health and rest centre which serves as a temporary accommodation for refugees from eastern regions of the country in the town of Korostyshiv, Zhytomyr region, Ukraine, July 30, 2015. More than 400 people who left eastern Ukraine due to a military conflict have arrived at the sanatorium in Korostyshiv since the summer of 2014, according to representatives. (Photo by Valentyn Ogirenko/Reuters)
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01 Aug 2015 11:46:00
A girl plays with colourful papers at the 23rd Sziget (Island) Festival on Shipyard Island in Budapest, Hungary, 13 August 2015. (Photo by Balazs Mohai/EPA)

A girl plays with colourful papers at the 23rd Sziget (Island) Festival on Shipyard Island in Budapest, Hungary, 13 August 2015. The festival is one of the biggest cultural events of Europe, offering art exhibitions, theatrical and circus performances and music concerts. Almost 200 performers from 47 countries will entertain the hundreds of thousands of visitors from 11 to 18 August. (Photo by Balazs Mohai/EPA)
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15 Aug 2015 11:47:00