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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A general view of Uluru is seen as it rains on November 28, 2013 in Uluru-Kata Tjuta National Park, Australia. Uluru/ Ayers Rock is a large sandstone formation situated in central Australia approximately 335km from Alice Springs. The site and its surrounding area is scared to the Anangu people, the Indigenous people of this area and is visited by over 250,000 people each year.  (Photo by Mark Kolbe/Getty Images)

A general view of Uluru is seen as it rains on November 28, 2013 in Uluru-Kata Tjuta National Park, Australia. Uluru/ Ayers Rock is a large sandstone formation situated in central Australia approximately 335km from Alice Springs. The site and its surrounding area is scared to the Anangu people, the Indigenous people of this area and is visited by over 250,000 people each year. (Photo by Mark Kolbe/Getty Images)
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30 Jan 2014 13:27:00
Nepalese women performs ritual as they take a holy bath in the Bagmati River, during the Rishi Panchami festival, in Kathmandu, Nepal September 18, 2015. Rishi Panchami is observed on the last day of Teej when women worship Sapta Rishi (Seven Saints) to ask for forgiveness for sins committed during their menstrual periods throughout the year. (Photo by Navesh Chitrakar/Reuters)

Nepalese women performs ritual as they take a holy bath in the Bagmati River, during the Rishi Panchami festival, in Kathmandu, Nepal September 18, 2015. Rishi Panchami is observed on the last day of Teej when women worship Sapta Rishi (Seven Saints) to ask for forgiveness for sins committed during their menstrual periods throughout the year. The Hindu religion considers menstruation as a representation of impurity and women are prohibited from taking part in religious practices during their monthly menstruations. (Photo by Navesh Chitrakar/Reuters)
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21 Sep 2015 12:23:00
13-year-old Emmanuel Festo from Tanzania poses for a portrait with a plush toy that he says makes him feel safe at night and that he sleeps with, in New York's Staten Island, September 21, 2015. Albino body parts are highly valued in witchcraft and can fetch a high price. Superstition leads many to believe albino children are ghosts who bring bad luck. (Photo by Carlo Allegri/Reuters)

13-year-old Emmanuel Festo from Tanzania poses for a portrait with a plush toy that he says makes him feel safe at night and that he sleeps with, in New York's Staten Island, September 21, 2015. Albino body parts are highly valued in witchcraft and can fetch a high price. Superstition leads many to believe albino children are ghosts who bring bad luck. Some believe the limbs are more potent if the victims scream during amputation, according to a 2013 United Nations report. (Photo by Carlo Allegri/Reuters)
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03 Oct 2015 08:04:00
A visitor looks at a sculpture by a Chinese artist Chen Wenling at the "Sculpture by the Sea" exhibition which runs along the Bondi to Tamarama coastal walk in Sydney on October 22, 2015. The world's largest annual free-to-the-public outdoor sculpture exhibition runs from October 22 – November 8 this year and features over 107 sculptures by artists around the world. (Photo by Saeed Khan/AFP Photo)

A visitor looks at a sculpture by a Chinese artist Chen Wenling at the "Sculpture by the Sea" exhibition which runs along the Bondi to Tamarama coastal walk in Sydney on October 22, 2015. The world's largest annual free-to-the-public outdoor sculpture exhibition runs from October 22 – November 8 this year and features over 107 sculptures by artists around the world. (Photo by Saeed Khan/AFP Photo)
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24 Oct 2015 10:17:00
Nubian women sell traditional handicrafts at the Nubian Gharb Suheil village, near Aswan south of Egypt, October 1, 2015. For half a century, Egypt's Nubians have patiently lobbied the government in Cairo for a return to their homelands on the banks of the upper Nile, desperate to reclaim territory their ancestors first cultivated 3,000 years ago. (Photo by Mohamed Abd El Ghany/Reuters)

Nubian women sell traditional handicrafts at the Nubian Gharb Suheil village, near Aswan south of Egypt, October 1, 2015. For half a century, Egypt's Nubians have patiently lobbied the government in Cairo for a return to their homelands on the banks of the upper Nile, desperate to reclaim territory their ancestors first cultivated 3,000 years ago. (Photo by Mohamed Abd El Ghany/Reuters)
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19 Nov 2015 08:04:00
A woman attends a boxing class at Princess Women's Boxing Club in Shanghai December 3, 2014. Women have boxed as long as the sport has existed but for years they were relegated out of national and international competitions in many countries around the world. Female boxers entered the ring in an exhibition match at the 1904 Olympic Games, but it was more than a century later when they were given the green light to make their Olympic debut in London in 2012. (Photo by Carlos Barria/Reuters)

A woman attends a boxing class at Princess Women's Boxing Club in Shanghai December 3, 2014. Women have boxed as long as the sport has existed but for years they were relegated out of national and international competitions in many countries around the world. Female boxers entered the ring in an exhibition match at the 1904 Olympic Games, but it was more than a century later when they were given the green light to make their Olympic debut in London in 2012. (Photo by Carlos Barria/Reuters)
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10 Dec 2014 12:46:00
Initially the project started when I was working in Atlanta. About four years ago, a roommate of mine had a Yorkie and we thought it would be funny to take some photos of this really cute dog with a few handguns. Once my friends saw the photos they started asking me to take pictures of their dogs with other firearms. (Photo and caption by Ben Haulenbeek/Puppies with guns calendar 2015)

Initially the project started when I was working in Atlanta. About four years ago, a roommate of mine had a Yorkie and we thought it would be funny to take some photos of this really cute dog with a few handguns. Once my friends saw the photos they started asking me to take pictures of their dogs with other firearms... (Photo and caption by Ben Haulenbeek/Puppies with guns calendar 2015)
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14 Dec 2014 11:59:00