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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A painting of Chinese President Xi Jinping holding an umbrella is seen on the toilet wall in a guesthouse in Hong Kong December 30, 2014. Set up in a small apartment in the Causeway Bay shopping district, the guesthouse that gives what it calls “Umbrella Revolution Occupation Experience” charges guest HK$100 (US$13) a night to stay in a tent surrounded by pro-democracy banners. (Photo by Tyrone Siu/Reuters)

A painting of Chinese President Xi Jinping holding an umbrella is seen on the toilet wall in a guesthouse in Hong Kong December 30, 2014. Set up in a small apartment in the Causeway Bay shopping district, the guesthouse that gives what it calls “Umbrella Revolution Occupation Experience” charges guest HK$100 (US$13) a night to stay in a tent surrounded by pro-democracy banners, a cardboard cutout of President Xi Jinping holding a yellow umbrella, and serve toilet paper printed with the face of embattled leader of Hong Kong chief executive Leung Chun-ying. (Photo by Tyrone Siu/Reuters)
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31 Dec 2014 14:00:00
A devotee of the Chinese Jui Tui Shrine has his face pierced with metal rods during a street procession during the annual Vegetarian Festival in the southern Thai town of Phuket on October 19, 2015. During the festival, which begins on the first evening of the ninth lunar month and lasts nine days, religious devotees slash themselves with swords, pierce their cheeks with sharp objects and commit other painful acts to purify themselves, taking on the sins of the community. (Photo by Nicolas Asfouri/AFP Photo)

A devotee of the Chinese Jui Tui Shrine has his face pierced with metal rods during a street procession during the annual Vegetarian Festival in the southern Thai town of Phuket on October 19, 2015. During the festival, which begins on the first evening of the ninth lunar month and lasts nine days, religious devotees slash themselves with swords, pierce their cheeks with sharp objects and commit other painful acts to purify themselves, taking on the sins of the community. (Photo by Nicolas Asfouri/AFP Photo)
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21 Oct 2015 08:05:00
A visitor looks at a sculpture by a Chinese artist Chen Wenling at the "Sculpture by the Sea" exhibition which runs along the Bondi to Tamarama coastal walk in Sydney on October 22, 2015. The world's largest annual free-to-the-public outdoor sculpture exhibition runs from October 22 – November 8 this year and features over 107 sculptures by artists around the world. (Photo by Saeed Khan/AFP Photo)

A visitor looks at a sculpture by a Chinese artist Chen Wenling at the "Sculpture by the Sea" exhibition which runs along the Bondi to Tamarama coastal walk in Sydney on October 22, 2015. The world's largest annual free-to-the-public outdoor sculpture exhibition runs from October 22 – November 8 this year and features over 107 sculptures by artists around the world. (Photo by Saeed Khan/AFP Photo)
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24 Oct 2015 10:17:00
Models painted in camouflage colours to blend in with the background pose for Chinese artist Liu Bolin's artwork “Dongji”, or Winter Solstice, on the second day after China's capital Beijing issued its second ever “red alert” for air pollution, in Beijing, China, December 20, 2015. (Photo by Kim Kyung-Hoon/Reuters)

Models painted in camouflage colours to blend in with the background pose for Chinese artist Liu Bolin's artwork “Dongji”, or Winter Solstice, on the second day after China's capital Beijing issued its second ever “red alert” for air pollution, in Beijing, China, December 20, 2015. In this artwork, Liu wants to express his concerns about China and its people, including air pollution problem, Liu told Reuters. (Photo by Kim Kyung-Hoon/Reuters)
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22 Dec 2015 08:01:00
A relative of a Chinese passenger aboard the Malaysia Airlines MH370, covers his face after being told the latest update in Beijing, China, Monday, March 24, 2014. (Photo by Ng Han Guan/AP Photo)

A relative of a Chinese passenger aboard the Malaysia Airlines MH370, covers his face after being told the latest update in Beijing, China, Monday, March 24, 2014. A new analysis of satellite data indicates the missing Malaysia Airlines plane crashed into a remote corner of the Indian Ocean, Malaysian Prime Minister Najib Razak said Monday. The news is a major breakthrough in the unprecedented two-week struggle to find out what happened to Flight 370, which disappeared shortly after takeoff from Kuala Lumpur to Beijing with 239 passengers and crew aboard on March 8. (Photo by Ng Han Guan/AP Photo)
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25 Mar 2014 08:26:00
Chinese aids activists hand out condoms in a subway train in Wuhan, central China's Hubei province on December 1, 2014. The World Health Organization issued a call to action to China on December 1, 2014 over HIV/AIDS as government figures said nearly half a million people are living with the disease or its precursor, with hundreds of thousands more thought to be undiagnosed. (Photo by AFP Photo)

Chinese aids activists hand out condoms in a subway train in Wuhan, central China's Hubei province on December 1, 2014. The World Health Organization issued a call to action to China on December 1, 2014 over HIV/AIDS as government figures said nearly half a million people are living with the disease or its precursor, with hundreds of thousands more thought to be undiagnosed. (Photo by AFP Photo)
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06 Dec 2014 12:57:00
A Uyghur boy sits atop a horse as he has his picture taken outside the Id Kah Mosque before the Eid holiday  on July 28, 2014 in old Kashgar, Xinjiang Province, China. (Photo by Kevin Frayer/Getty Images)

A Uyghur boy sits atop a horse as he has his picture taken outside the Id Kah Mosque before the Eid holiday on July 28, 2014 in old Kashgar, Xinjiang Province, China. Nearly 100 people have been killed in unrest in the restive Xinjiang Province in the last week in what authorities say is terrorism but advocacy groups claim is a result of a government crackdown to silence opposition to its policies. China's Muslim Uyghur ethnic group faces cultural and religious restrictions by the Chinese government. Beijing says it is investing heavily in the Xinjiang region but Uyghurs are increasingly dissatisfied with the influx of Han Chinese and uneven economic development. (Photo by Kevin Frayer/Getty Images)
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10 Aug 2014 10:53:00