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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A boat, center, is surrounded by Japan Cost Guard's patrol boats after some activists descended from the boat on Uotsuri Island, one of the islands of Senkaku in Japanese and Diaoyu in Chinese, in East China Sea Wednesday, Aug. 15, 2012. (Photo by Yomiuri Shimbun/Masataka Morita/AP Photo)

A boat, center, is surrounded by Japan Cost Guard's patrol boats after some activists descended from the boat on Uotsuri Island, one of the islands of Senkaku in Japanese and Diaoyu in Chinese, in East China Sea Wednesday, Aug. 15, 2012. Regional tensions flared on the emotional anniversary of Japan's World War II surrender as activists from China and South Korea used Wednesday's occasion to press rival territorial claims, prompting 14 arrests by Japanese authorities. The 14 people had traveled by boat from Hong Kong to the disputed islands controlled by Japan but also claimed by China and Taiwan. (Photo by Yomiuri Shimbun/Masataka Morita/AP Photo)
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18 Sep 2012 09:02:00
A relative of a Chinese passenger aboard the Malaysia Airlines MH370, covers his face after being told the latest update in Beijing, China, Monday, March 24, 2014. (Photo by Ng Han Guan/AP Photo)

A relative of a Chinese passenger aboard the Malaysia Airlines MH370, covers his face after being told the latest update in Beijing, China, Monday, March 24, 2014. A new analysis of satellite data indicates the missing Malaysia Airlines plane crashed into a remote corner of the Indian Ocean, Malaysian Prime Minister Najib Razak said Monday. The news is a major breakthrough in the unprecedented two-week struggle to find out what happened to Flight 370, which disappeared shortly after takeoff from Kuala Lumpur to Beijing with 239 passengers and crew aboard on March 8. (Photo by Ng Han Guan/AP Photo)
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25 Mar 2014 08:26:00
Chinese aids activists hand out condoms in a subway train in Wuhan, central China's Hubei province on December 1, 2014. The World Health Organization issued a call to action to China on December 1, 2014 over HIV/AIDS as government figures said nearly half a million people are living with the disease or its precursor, with hundreds of thousands more thought to be undiagnosed. (Photo by AFP Photo)

Chinese aids activists hand out condoms in a subway train in Wuhan, central China's Hubei province on December 1, 2014. The World Health Organization issued a call to action to China on December 1, 2014 over HIV/AIDS as government figures said nearly half a million people are living with the disease or its precursor, with hundreds of thousands more thought to be undiagnosed. (Photo by AFP Photo)
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06 Dec 2014 12:57:00
A Uyghur boy sits atop a horse as he has his picture taken outside the Id Kah Mosque before the Eid holiday  on July 28, 2014 in old Kashgar, Xinjiang Province, China. (Photo by Kevin Frayer/Getty Images)

A Uyghur boy sits atop a horse as he has his picture taken outside the Id Kah Mosque before the Eid holiday on July 28, 2014 in old Kashgar, Xinjiang Province, China. Nearly 100 people have been killed in unrest in the restive Xinjiang Province in the last week in what authorities say is terrorism but advocacy groups claim is a result of a government crackdown to silence opposition to its policies. China's Muslim Uyghur ethnic group faces cultural and religious restrictions by the Chinese government. Beijing says it is investing heavily in the Xinjiang region but Uyghurs are increasingly dissatisfied with the influx of Han Chinese and uneven economic development. (Photo by Kevin Frayer/Getty Images)
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10 Aug 2014 10:53:00
Chinese artist Zhou Jie takes a nap on an unfinished iron wire bed, one of her sculpture works, after lunch as a friend of hers looks on at Beijing Now Art Gallery, in Beijing August 11, 2014. (Photo by Jason Lee/Reuters)

Chinese artist Zhou Jie takes a nap on an unfinished iron wire bed, one of her sculpture works, after lunch as a friend of hers looks on at Beijing Now Art Gallery, in Beijing August 11, 2014. Zhou started her art project titled “36 Days” on August 9, in which she would live inside an exhibition hall with an unfinished iron wire bed, some iron wire sculptures in the shape of stuffed animal dolls, a certain amount of food and her mobile phone, for 36 days. The entire process is open to visitors and she may also interact with them, according to Zhou. (Photo by Jason Lee/Reuters)
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16 Aug 2014 10:37:00
A painting of Chinese President Xi Jinping holding an umbrella is seen on the toilet wall in a guesthouse in Hong Kong December 30, 2014. Set up in a small apartment in the Causeway Bay shopping district, the guesthouse that gives what it calls “Umbrella Revolution Occupation Experience” charges guest HK$100 (US$13) a night to stay in a tent surrounded by pro-democracy banners. (Photo by Tyrone Siu/Reuters)

A painting of Chinese President Xi Jinping holding an umbrella is seen on the toilet wall in a guesthouse in Hong Kong December 30, 2014. Set up in a small apartment in the Causeway Bay shopping district, the guesthouse that gives what it calls “Umbrella Revolution Occupation Experience” charges guest HK$100 (US$13) a night to stay in a tent surrounded by pro-democracy banners, a cardboard cutout of President Xi Jinping holding a yellow umbrella, and serve toilet paper printed with the face of embattled leader of Hong Kong chief executive Leung Chun-ying. (Photo by Tyrone Siu/Reuters)
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31 Dec 2014 14:00:00
A devotee of the Chinese Jui Tui Shrine has his face pierced with metal rods during a street procession during the annual Vegetarian Festival in the southern Thai town of Phuket on October 19, 2015. During the festival, which begins on the first evening of the ninth lunar month and lasts nine days, religious devotees slash themselves with swords, pierce their cheeks with sharp objects and commit other painful acts to purify themselves, taking on the sins of the community. (Photo by Nicolas Asfouri/AFP Photo)

A devotee of the Chinese Jui Tui Shrine has his face pierced with metal rods during a street procession during the annual Vegetarian Festival in the southern Thai town of Phuket on October 19, 2015. During the festival, which begins on the first evening of the ninth lunar month and lasts nine days, religious devotees slash themselves with swords, pierce their cheeks with sharp objects and commit other painful acts to purify themselves, taking on the sins of the community. (Photo by Nicolas Asfouri/AFP Photo)
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21 Oct 2015 08:05:00