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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
A man walks along an empty street near the central financial district in Hong Kong September 30, 2014. Tens of thousands of pro-democracy protesters extended a blockade of Hong Kong streets on Tuesday, stockpiling supplies and erecting makeshift barricades ahead of what some fear may be a push by police to clear the roads before Chinese National Day. (Photo by Carlos Barria/Reuters)

Reuters photographer Bobby Yip took a series of portraits of people taking part in the “Occupy Central” protests in Hong Kong, and asked them why they had joined the demonstrations. China rules Hong Kong under a “one country, two systems” formula that accords the territory limited democracy. Tens of thousands of mostly student protesters are demanding Beijing give them full democracy, with the freedom to nominate election candidates. The unrest is the worst in Hong Kong since China resumed its rule over the former British colony in 1997. (Photo by Carlos Barria/Reuters)
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30 Sep 2014 09:10:00
Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. Currently there is widespread fear that the Taliban who already control around half the country will reintroduce its notorious system barring girls and women from almost all work, and access to education. The Ministry of Education has announced the opening of schools, but there are  mixed reports in many areas where the Taliban have taken control or where fighting is ongoing. (Photo by Paula Bronstein/Getty Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)
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12 Aug 2021 08:41:00
Villagers from Jiexi Jiantan village perform a ritual of “Zha Laoye”, or “Cracking local spirits”, in Chaoshan, Guangdong Province, China, 10 February 2019. Jiexi Jiantan Village celebrates the annual custom of “Zha Laoye” where Laoye are local spirits. Every third day of the lunar New Year, statues of local spirits known as the “Thousand-mile Eye” Laoye and “Ear Following the Wind” Laoye are brought out to the village committee to receive incensed tea offered by believers. By the sixth day of the year, the “Zha Laoye” activities begin with each man holding one of the statues on a chair above his head while run around a bonfire. Two other men light firecrackers strung up on a long bamboo poles and chase the spirit around the bonfire, signifying a bountiful new year. (Photo by EPA/EFE/ZNSEN)

Villagers from Jiexi Jiantan village perform a ritual of “Zha Laoye”, or “Cracking local spirits”, in Chaoshan, Guangdong Province, China, 10 February 2019. Jiexi Jiantan Village celebrates the annual custom of “Zha Laoye” where Laoye are local spirits. Every third day of the lunar New Year, statues of local spirits known as the “Thousand-mile Eye” Laoye and “Ear Following the Wind” Laoye are brought out to the village committee to receive incensed tea offered by believers. (Photo by EPA/EFE/ZNSEN)
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23 Feb 2019 00:07:00
A four-year-old dog Nika stands next to an image of Cuba's revolutionary hero Ernesto “Che” Guevara in front of a flooded street in Havana, January 23, 2016. Havana's seafront Malecon continued to be slammed by massive waves that flooded parts of the seaside city on Saturday. As a result, Havana was confronting flooding as a cold front passes through the Caribbean island.  (Photo by Alexandre Meneghini/Reuters)

A four-year-old dog Nika stands next to an image of Cuba's revolutionary hero Ernesto “Che” Guevara in front of a flooded street in Havana, January 23, 2016. Havana's seafront Malecon continued to be slammed by massive waves that flooded parts of the seaside city on Saturday. As a result, Havana was confronting flooding as a cold front passes through the Caribbean island. The giant waves began washing up onto shore during sunrise. The waves have been accompanied by winds passing through at a speed between 35 and 50 km (21 to 31 miles) per hour. (Photo by Alexandre Meneghini/Reuters)
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24 Jan 2016 15:03:00
Water way to go. These incredible images show the moment two brave adventurers decided to body board down Europes longest glacier. Seen carving their way through the icy rivers of the Aletsch Glacier in Switzerland, the pair are seen risking their lives for an adrenalin rush of a whole new kind. (Photo by David Carlier/Caters News)

Water way to go. These incredible images show the moment two brave adventurers decided to body board down Europes longest glacier. Seen carving their way through the icy rivers of the Aletsch Glacier in Switzerland, the pair are seen risking their lives for an adrenalin rush of a whole new kind. Pictured mounted on their body boards as part of a sport known as hydrospeeding, the daredevils risked being carried away by strong currents and even drowning in hidden crevices to complete the winding seven mile journey. But if that wasnt dangerous enough, the duo also ran the risk of being overwhelmed by collapsing glacial lakes that could be released into the river at any moment. (Photo by David Carlier/Caters News)
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17 Dec 2014 11:36:00
A worker paints the Amazon Tall Tower Observatory (ATTO) in Sao Sebastiao do Uatuma in the middle of the Amazon forest in Amazonas state January 10, 2015. (Photo by Bruno Kelly/Reuters)

A worker paints the Amazon Tall Tower Observatory (ATTO) in Sao Sebastiao do Uatuma in the middle of the Amazon forest in Amazonas state January 10, 2015. The Amazon Tall Tower Observatory is a project of Brazil's National Institute of Amazonian Research and Germany's Max Planck Institute and will be equipped with high-tech instruments and an observatory to monitor relationships between the jungle and the atmosphere from next July. According to the institutes, ATTO will gather data on heat, water, carbon gas, winds, cloud formation and weather patterns. (Photo by Bruno Kelly/Reuters)
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14 Jan 2015 12:39:00
Filipino typhoon victims walk through heavy mud in the typhoon hit town of Taft, Samar island, Philippines, 08 December 2014. Typhoon Hagupit weakened into a tropical storm as it moved towards the Philippine capital after killing at least 27 people and displacing more than one million people in the eastern and central provinces. (Photo by Francis R. Malasig/EPA)

Filipino typhoon victims walk through heavy mud in the typhoon hit town of Taft, Samar island, Philippines, 08 December 2014. Typhoon Hagupit weakened into a tropical storm as it moved towards the Philippine capital after killing at least 27 people and displacing more than one million people in the eastern and central provinces. Hagupit slammed into the country's eastern coast on 06 December evening, bringing heavy rains and gale-force winds that flattened homes, ripped off roofs, and knocked out power and communications. (Photo by Francis R. Malasig/EPA)
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10 Dec 2014 11:37:00