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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. Currently there is widespread fear that the Taliban who already control around half the country will reintroduce its notorious system barring girls and women from almost all work, and access to education. The Ministry of Education has announced the opening of schools, but there are  mixed reports in many areas where the Taliban have taken control or where fighting is ongoing. (Photo by Paula Bronstein/Getty Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)
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12 Aug 2021 08:41:00
“Maya” girl Ines de la Paloma, 9, (L), sits with her friend Nuria Sanchez Caballero, 6, at an altar during “Las Mayas” festivity in Madrid, Spain, May 8, 2016. “Las Mayas” festival is held annually at the beginning of May to celebrate the awakening of nature in Spring. Young girls are chosen to become “Mayas” and sit at altars decorated with flowers so that people can admire them. The “Mayas” are dressed in traditional costumes, often displaying shawls and a wreath of flowers on their heads. (Photo by Susana Vera/Reuters)

“Maya” girl Ines de la Paloma, 9, (L), sits with her friend Nuria Sanchez Caballero, 6, at an altar during “Las Mayas” festivity in Madrid, Spain, May 8, 2016. “Las Mayas” festival is held annually at the beginning of May to celebrate the awakening of nature in Spring. Young girls are chosen to become “Mayas” and sit at altars decorated with flowers so that people can admire them. (Photo by Susana Vera/Reuters)
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11 May 2016 11:36:00
Girl in newari attire makes a funny face to her friend as she performs a Mass Bel Bibaha (marriage) ceremony in Bhaktapur, Bagmati, Nepal on December 7, 2021. The two-day ceremony, usually held several times a year, sees pre-adolescent “marry” the Hindu deity, Vishnu, symbolised by the local “bael” (wood apple) fruit. Normally Newar girls marry thrice time in there life as first marriage with Bael fruit, second with sun and third with human. (Photo by Amit Machamasi/ZUMA Wire/Alamy Live News)

Girl in newari attire makes a funny face to her friend as she performs a Mass Bel Bibaha (marriage) ceremony in Bhaktapur, Bagmati, Nepal on December 7, 2021. The two-day ceremony, usually held several times a year, sees pre-adolescent “marry” the Hindu deity, Vishnu, symbolised by the local “bael” (wood apple) fruit. Normally Newar girls marry thrice time in there life as first marriage with Bael fruit, second with sun and third with human. (Photo by Amit Machamasi/ZUMA Wire/Alamy Live News)
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05 Jan 2022 07:49:00
Young girls pose for a photo during the Kumari Puja Ritual on the 9th day of the Durga puja festival at a Pandal (Temporary place for worship) in Kolkata on October 4, 2022. Kumari Puja is an Indian Hindu Tradition mainly celebrated during the Durga Puja according to the Hindu Calendar. The philosophical basis of Kumari Puja is to establish the value of women. Devotees believe it will overcome all barriers, dangers for the young girls in the coming future and also, they will be empowered to handle any stress and obstruction in their coming life. (Photo by Avishek Das/SOPA Images/Rex Features/Shutterstock)

Young girls pose for a photo during the Kumari Puja Ritual on the 9th day of the Durga puja festival at a Pandal (Temporary place for worship) in Kolkata on October 4, 2022. Kumari Puja is an Indian Hindu Tradition mainly celebrated during the Durga Puja according to the Hindu Calendar. The philosophical basis of Kumari Puja is to establish the value of women. Devotees believe it will overcome all barriers, dangers for the young girls in the coming future and also, they will be empowered to handle any stress and obstruction in their coming life. (Photo by Avishek Das/SOPA Images/Rex Features/Shutterstock)
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13 Oct 2022 04:25:00
LONDON, ENGLAND - SEPTEMBER 27:  A woman at Foyles bookshop looks at a copy of JK Rowling's latest novel 'The Casual Vacancy' which has gone on sale today starting at 8:00 am on September 27, 2012 in London, England.  'The Casual Vacancy' is JK Rowling's first book aimed at an adult readership and is centered on a parish council election in a small West Country town.  (Photo by Oli Scarff)

A woman at Foyles bookshop looks at a copy of J. K. Rowling's latest novel “The Casual Vacancy” which has gone on sale today starting at 8:00 am on September 27, 2012 in London, England. “The Casual Vacancy” is J. K. Rowling's first book aimed at an adult readership and is centered on a parish council election in a small West Country town. (Photo by Oli Scarf)
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28 Sep 2012 05:49:00
Activists protest the Shell Oil Company's drilling rig Polar Pioneer which is parked at Terminal 5 at the Port of Seattle, Washington May 16, 2015. Hundreds of activists in kayaks and small boats fanned out on a Seattle bay on Saturday to protest plans by Royal Dutch Shell to resume oil exploration in the Arctic and keep two of its drilling rigs stored in the city's port. (Photo by Jason Redmond/Reuters)

Activists protest the Shell Oil Company's drilling rig Polar Pioneer which is parked at Terminal 5 at the Port of Seattle, Washington May 16, 2015. Hundreds of activists in kayaks and small boats fanned out on a Seattle bay on Saturday to protest plans by Royal Dutch Shell to resume oil exploration in the Arctic and keep two of its drilling rigs stored in the city's port. (Photo by Jason Redmond/Reuters)
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18 May 2015 12:07:00
This handout picture taken by Pleiades satellite and released on September 27, 2013 shows a small island of mud and rock created by the huge earthquake that hit southwest Pakistan has fascinated locals but experts – who found methane gas rising from it – say it is unlikely to last long

This handout picture taken by Pleiades satellite and released on September 27, 2013 shows a small island of mud and rock created by the huge earthquake that hit southwest Pakistan has fascinated locals but experts – who found methane gas rising from it – say it is unlikely to last long. The 7.7-magnitude quake struck on September 25 in Baluchistan's remote Awaran district, killing at least 271 people and affecting hundreds of thousands. The island is about 60 to 70 feet (18 to 21 metres) high, up to 300 feet wide and up to 120 feet long and sits about 650 feet from the coast. (Photo by AFP Photo/CNES/Distribution Astrium Services)
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01 Oct 2013 08:23:00