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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. Currently there is widespread fear that the Taliban who already control around half the country will reintroduce its notorious system barring girls and women from almost all work, and access to education. The Ministry of Education has announced the opening of schools, but there are  mixed reports in many areas where the Taliban have taken control or where fighting is ongoing. (Photo by Paula Bronstein/Getty Images)

Behishta,11, listens during 4th grade class at the Zarghoona high school on July 25 2021 in Kabul, Afghanistan. The Zarghoona girls high school is the largest in Kabul with 8,500 female students attending classes. The school opened after a nearly two-month break due to the coronavirus (COVID-19) pandemic. (Photo by Paula Bronstein/Getty Images)
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12 Aug 2021 08:41:00
Beachgoers watch the detonation of a 500 pound British bomb on the beach on May 19, 2014 in Wassenaar, Netherlands. The bomb was dropped by the British allied forces during the second world war over nearby Leiden where it was found on a building site. (Photo by Michel Porro/Getty Images)

Beachgoers watch the detonation of a 500 pound British bomb on the beach on May 19, 2014 in Wassenaar, Netherlands. The bomb was dropped by the British allied forces during the second world war over nearby Leiden where it was found on a building site. (Photo by Michel Porro/Getty Images)
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24 May 2014 12:51:00
A surfer drops in on a large wave at Praia do Norte, in Nazare December 11, 2014. Praia do Norte beach has gained popularity with big wave surfers since Hawaiian surfer Garrett McNamara broke a world record for the largest wave surfed here in 2011. (Photo by Rafael Marchante/Reuters)

A surfer drops in on a large wave at Praia do Norte, in Nazare December 11, 2014. Praia do Norte beach has gained popularity with big wave surfers since Hawaiian surfer Garrett McNamara broke a world record for the largest wave surfed here in 2011. (Photo by Rafael Marchante/Reuters)
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12 Dec 2014 12:55:00
A Palestinian youth jumps into the Mediterranean sea on the beach at the port of Gaza City, Gaza, Monday, August 27, 2012. (Photo by Hatem Moussa/AP Photo)

“Hatem Moussa joined The Associated Press as a photojournalist in 1998. Since then, the Gaza City-based Moussa has covered repeated rounds of Israeli-Palestinian fighting in Gaza, including the wars of 2008-9, 2012 and 2014”. – Associated Press. Photo: A Palestinian youth jumps into the Mediterranean sea on the beach at the port of Gaza City, Gaza, Monday, August 27, 2012. (Photo by Hatem Moussa/AP Photo)
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19 Aug 2014 10:20:00
A bogieboarder rides a wave at the wedge in Newport Beach, Calif., Wednesday, August 27, 2014. Southern California beachgoers experienced much higher than normal surf, brought on by Hurricane Marie spinning off the coast of Mexico. (Photo by Chris Carlson/AP Photo)

A bogieboarder rides a wave at the wedge in Newport Beach, Calif., Wednesday, August 27, 2014. Southern California beachgoers experienced much higher than normal surf, brought on by Hurricane Marie spinning off the coast of Mexico. (Photo by Chris Carlson/AP Photo)
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28 Aug 2014 10:58:00
Chinese women wear face-kinis as they walk in to the water to swim at the beach on August 20, 2014 in the Yellow Sea in Qingdao, China. The locally designed mask is worn by many local women to protect them from jellyfish stings, algae and the sun's ultraviolet rays. (Photo by Kevin Frayer/Getty Images)

Chinese women wear face-kinis as they walk in to the water to swim at the beach on August 20, 2014 in the Yellow Sea in Qingdao, China. The locally designed mask is worn by many local women to protect them from jellyfish stings, algae and the sun's ultraviolet rays. (Photo by Kevin Frayer/Getty Images)
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28 Aug 2014 11:08:00
A wax figure depicting Jennifer Lopez by wax museum Madame Tussauds dressed in a new set of clothes attracts the attention of pedestrians during a press event at a beach bar in Berlin,†Germany, August 21, 2015. (Photo by Jens Kalaene/EPA)

A wax figure depicting Jennifer Lopez by wax museum Madame Tussauds dressed in a new set of clothes attracts the attention of pedestrians during a press event at a beach bar in Berlin,†Germany, August 21, 2015. (Photo by Jens Kalaene/EPA)
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22 Aug 2015 13:10:00