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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
Barrier tape is tied around 15-month-old Shivani's ankle to prevent her from running away, while her mother Sarta Kalara works at a construction site nearby, in Ahmedabad, India, April 19, 2016. Kalara says she has no option but to tether her daughter Shivani to a stone despite her crying, while she and her husband work for 250 rupees ($3.8) each a shift digging holes for electricity cables in the city of Ahmedabad. There are about 40 million construction workers in India, at least one in five of them women, and the majority poor migrants who shift from site to site, building infrastructure for India's booming cities. Across the country it is not uncommon to see young children rolling in the sand and mud as their parents carry bricks or dig for new roads or luxury houses. (Photo by Amit Dave/Reuters)

Barrier tape is tied around 15-month-old Shivani's ankle to prevent her from running away, while her mother Sarta Kalara works at a construction site nearby, in Ahmedabad, India, April 19, 2016. Kalara says she has no option but to tether her daughter Shivani to a stone despite her crying, while she and her husband work for 250 rupees ($3.8) each a shift digging holes for electricity cables in the city of Ahmedabad. There are about 40 million construction workers in India, at least one in five of them women, and the majority poor migrants who shift from site to site, building infrastructure for India's booming cities. Across the country it is not uncommon to see young children rolling in the sand and mud as their parents carry bricks or dig for new roads or luxury houses. (Photo by Amit Dave/Reuters)
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