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12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome

“Cockayne syndrome (also called Weber-Cockayne syndrome, or Neill-Dingwall Syndrome) is a rare autosomal recessive congenital disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight (photosensitivity), and premature aging. Hearing loss and eye abnormalities (pigmentary retinopathy) are other common features, but problems with any or all of the internal organs are possible. It is associated with a group of disorders called leukodystrophies. The underlying disorder is a defect in a DNA repair mechanism. It is named after English physician Edward Alfred Cockayne (1880–1956)”. – Wikipedia

Photo: Mother of 12-year-old Chinese girl Sun Yangyang suffering from Cockayne syndrome, tends her at the First Affiliated Hospital of Jilin University on November 11, 2006 in Changchun of Jilin Province, China. The disease results in the senile appearance of Yangyang and also causes eyesight, hearing weakness and other problems. Doctors failed to cure the girl... (Photo by China Photos/Getty Images)
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08 Aug 2011 11:17:00
Visitors watch as Grigory Broverman, a member of the Cryophile winter swimmers club, pours a bucket of cold water over his 6-year-old daughter Liza during a flash mob, part of a celebration of Polar Bear Day at the Royev Ruchey Zoo in a suburb of the Siberian city of Krasnoyarsk, Russia, November 29, 2015. The air temperature was around minus 5 degrees Celsius. (Photo by Ilya Naymushin/Reuters)

Visitors watch as Grigory Broverman, a member of the Cryophile winter swimmers club, pours a bucket of cold water over his 6-year-old daughter Liza during a flash mob, part of a celebration of Polar Bear Day at the Royev Ruchey Zoo in a suburb of the Siberian city of Krasnoyarsk, Russia, November 29, 2015. The air temperature was around minus 5 degrees Celsius. (Photo by Ilya Naymushin/Reuters)
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08 Jan 2016 08:06:00
Nepalese Hindu devotees offer oil lamps in the Bagmati River as they observe the festival of Bala Chaturdashi in the early morning hours at the Pashupati Temple in Kathmandu, Nepal, 28 November 2016. Seven kinds of seeds – paddy, barley, sesame, wheat, gram, maize and finger millet – are sown around the temple premises in the name of loved ones departed during the last three years, in the belief that the departed souls will receive salvation. (Photo by Narendra Shrestha)

Nepalese Hindu devotees offer oil lamps in the Bagmati River as they observe the festival of Bala Chaturdashi in the early morning hours at the Pashupati Temple in Kathmandu, Nepal, 28 November 2016. Seven kinds of seeds – paddy, barley, sesame, wheat, gram, maize and finger millet – are sown around the temple premises in the name of loved ones departed during the last three years, in the belief that the departed souls will receive salvation. (Photo by Narendra Shrestha)
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05 Dec 2016 11:28:00
Kayaks, 7, poses for a picture holding toy gun in a camp where Christians displaced by Islamic State militants are living, in Irbil, Iraq, Friday, December 23, 2016. Iraq’s Christians are marking the holiday in his camp for displaced people with a sense of worry and despair,  unable to return to their towns they were forced to flee two years ago by the Islamic State group’s onslaught. (Photo by Manu Brabo/AP Photo)

Kayaks, 7, poses for a picture holding toy gun in a camp where Christians displaced by Islamic State militants are living, in Irbil, Iraq, Friday, December 23, 2016. Iraq’s Christians are marking the holiday in his camp for displaced people with a sense of worry and despair, unable to return to their towns they were forced to flee two years ago by the Islamic State group’s onslaught. (Photo by Manu Brabo/AP Photo)
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24 Dec 2016 09:33:00
Japanese women wearing “yukata” casual summer kimono take selfies at Asakusa district in Tokyo, Japan, 13 September 2020. Asakusa is one of Tokyo's most-visited areas and is usually crowded with tourists. In Japan, the numbers of visitors from abroad fell by 99.9 percent from a year earlier in July due to the ban for entries of foreign visitors amid the coronavirus pandemic. (Photo by Franck Robichon/EPA/EFE)

Japanese women wearing “yukata” casual summer kimono take selfies at Asakusa district in Tokyo, Japan, 13 September 2020. Asakusa is one of Tokyo's most-visited areas and is usually crowded with tourists. In Japan, the numbers of visitors from abroad fell by 99.9 percent from a year earlier in July due to the ban for entries of foreign visitors amid the coronavirus pandemic. (Photo by Franck Robichon/EPA/EFE)
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24 Sep 2020 00:01:00
Bar Convent employee Lauren Masterman relaxes after cleaning a historic George and Arthur Maw tiled floor created in 1867, one of only two surviving examples of this assemblage of tiles, at England's oldest living convent Bar Convent on October 13, 2020. Visitors to the convent are being invited to follow in the footsteps of residents from the last 150 years and enjoy the historic space decorated with rare 19th century floor tiles. (Photo by Danny Lawson/PA Images via Getty Images)

Bar Convent employee Lauren Masterman relaxes after cleaning a historic George and Arthur Maw tiled floor created in 1867, one of only two surviving examples of this assemblage of tiles, at England's oldest living convent Bar Convent on October 13, 2020. Visitors to the convent are being invited to follow in the footsteps of residents from the last 150 years and enjoy the historic space decorated with rare 19th century floor tiles. (Photo by Danny Lawson/PA Images via Getty Images)
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15 Oct 2020 00:07:00
Dodgers fans celebrate in a lowrider vehicle after the Los Angeles Dodgers defeated the Tampa Bay Rays 3-1 on October 27, 2020 in Los Angeles, California. Fans gathered at Elysian park for game 6 of the World Series where the Los Angeles Dodgers defeated the Tampa Bay Rays to win the World Series for the first time in 32 years. (Photo by Brandon Bell/Getty Images)

Dodgers fans celebrate in a lowrider vehicle after the Los Angeles Dodgers defeated the Tampa Bay Rays 3-1 on October 27, 2020 in Los Angeles, California. Fans gathered at Elysian park for game 6 of the World Series where the Los Angeles Dodgers defeated the Tampa Bay Rays to win the World Series for the first time in 32 years. (Photo by Brandon Bell/Getty Images)
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02 Nov 2020 00:01:00
A statue of a woman made out of glass and rubble that resulted from the Beirut port mega explosion August 04, is placed opposite to the site of the blast in the Lebanese capital's harbour to mark the one year anniversary of the beginning of the anti-government protest movement across the country on October 20, 2020. Hundreds marched in Beirut on the weekend to mark the first anniversary of a non-sectarian protest movement that has rocked the political elite but has yet to achieve its goal of sweeping reform. (Photo by Joseph Eid/AFP Photo)

A statue of a woman made out of glass and rubble that resulted from the Beirut port mega explosion August 04, is placed opposite to the site of the blast in the Lebanese capital's harbour to mark the one year anniversary of the beginning of the anti-government protest movement across the country on October 20, 2020. Hundreds marched in Beirut on the weekend to mark the first anniversary of a non-sectarian protest movement that has rocked the political elite but has yet to achieve its goal of sweeping reform. (Photo by Joseph Eid/AFP Photo)
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24 Dec 2020 00:01:00